The Changing Lives of Older Couples Study

Wave I Widow Follow-up Survey

CODEBOOK

 

Facesheet

 

                                      

VAR #

 

  1001      FS.    Seq.#/CASE ID                                          

 

 

 

  1002      FS.    Respondent # -- 1st 4 digits (CLOC ID#)                

 

 

 

  1003      FS.    Respondent # -- last 2 digits, preprinted              

 

 

 

[V1004:  BUILD 6-digit Respondent ID# (V1002+V1003)]

 

 

                                                              Rev. 10/24/91

  1005      FS.    Result Code                                            

 

01.  Complete I'v

03.  Complete Telephone I'v

05.  Partial I'v

07.  Partial Telephone I'v

 

 

 

  1006      FS.    Respondent "history":  2 digits                        

 

Code 1st 2-digit # precoded on Facesheet

 

 

 

[V1007 - V1010: BUILD = 0]


 

 

1011        FS1.   INTERVIEWER's ID# (4 digits from label)                

 

 

 

 1012       FS2.   Interview No.: (2 digits from box)                     

 

99.  NA

 

 

 

 1013       FS3.   Date of Interview--MONTH                               

 

Code MONTH (01-12)

 

 

 

 1014       FS3.   Date of Interview--DAY                                 

 

Code DAY (01-31)

 

 

 

 1015       FS3.   Date of Interview--YEAR                                

 

Code 4-digit YEAR (1988-1995)

 

 

 

 1016       FS4.   Length of Interview                                    

 

Code # of MINS (001-240)

 

 


 

 

SECTION A:  HOUSEHOLD LISTING AND CIRCUMSTANCE OF THE DEATH

 

 

A1.    First, I need to list all the people who live here.  I don't need names, just the age, sex and relationship to you for each person.  Let's start with you.  How old are you?

 

Now I need the age, sex and relationship to you of any other adults and children who live here.

 

1101        A1.    SUMMARY # Persons in HOUSEHOLD                         

┌──────────────┐

0 in 1105-1131├─────01.  One            ┌──────────────┐

└──────────────┘                                            Code # persons

┌──────────────┐                                            listed in grid

0 in 1108-1131├─────02.  Two                               (01-20).     

└──────────────┘                                                      └──────────────┘

┌──────────────┐

0 in 1111-1131├─────03.  Three

└──────────────┘

┌──────────────┐

0 in 1114-1131├─────04.  Four

└──────────────┘

┌──────────────┐

0 in 1117-1131├─────05.  Five

└──────────────┘

┌──────────────┐

0 in 1120-1131├─────06.  Six

└──────────────┘

┌──────────────┐

0 in 1123-1131├─────07.  Seven

└──────────────┘

┌──────────────┐

0 in 1126-1131├─────08.  Eight

└──────────────┘

┌──────────────┐

0 in 1129-1131├─────09.  Nine

└──────────────┘

  10.  Ten

   .

   .

   .

  20.  Twenty

 

  99.  NA


 

 

1102(#1)    A1(a). MEMBERS OF THE HOUSEHOLD BY RELATIONSHIP TO RESPONDENT 

1105(#2)

1108(#3)           Partner/Spouse

1111(#4)          

1114(#5)           01.   RESPONDENT

1117(#6)           02.   Spouse of R

1120(#7)           03.   Partner of R

1123(#8)

1126(#9)           Child

1129(#10)

10.   Child(ren), NA sex (incl. foster child/stepchild)

11.   Son (incl. adopted)

12.   Daughter (incl. adopted)

13.   Stepson (incl. partner's son)

14.   Stepdaughter (incl. partner's daughter)

15.   Son-in-law (incl. daughter's partner)

16.   Daughter-in-law (incl. son's partner)

17.   Foster son

18.   Foster daughter

 

Parent/Grandparent

 

20.   Parent, NA sex ("parents" code 21, 22)

21.   Father (incl. adoptive father)

22.   Mother (incl. adoptive mother)

23.   Stepfather

24.   Stepmother

25.   Father-in-law (incl. partner's father); ("my in-laws" code 25 and 26)

26.   Mother-in-law (incl. partner's mother)

27.   Grandparent; great-grandparent, NA sex

28.   Grandfather; great-grandfather

29.   Grandmother; great-grandmother

 

Sibling/Sibling-in-law

 

31.   Brother

32.   Sister

33.   Stepbrother

34.   Stepsister

35.   Brother-in-law

36.   Sister-in-law


 

 

1102(#1)    A1(a). Continued                                              

1105(#2)

1108(#3)           Other Relatives

1111(#4)          

1114(#5)           40.   Grandchild/great grandchild, NA sex

1117(#6)           41.   Grandson; great grandson

1120(#7)           42.   Granddaughter; great granddaughter

1123(#8)           43.   Nephew

1126(#9)           44.   Niece

1129(#10)          45.   Uncle; great-uncle

46.   Aunt; great-aunt

47.   Cousin

48.   Other "in-laws"

┌─────────┐

Make Card├────────49.   Other relative

└─────────┘

 

 

 

Unrelated Persons

 

62.   Housemate/roommate

63.   Household employee; live-in sitter; housekeeper

64.   Friend

66.   Person related to R's partner (exc. child or parent)

67.   Roomer; boarder

 

 

 

┌─────────┐

Make Card├────────97.   Other unrelated person

└─────────┘

98.   DK

99.   NA

 

00.   Inap, no further persons in HU

 

 

 

 

 

1103(#1)    A1(b). SEX                                                    

1106(#2)

1109(#3)           1.  Male

1112(#4)           2.  Female

1115(#5)

1118(#6)           9.  NA

1121(#7)

1124(#8)           0.  Inap, no further persons listed

1127(#9)

1130(#10)

 

 

 

 

 

 

 

 

 

 


 

 

 

1104(#1)    A1(c). AGE                                                    

1107(#2)

1110(#3)           Code AGE (01-97)

1113(#4)

1116(#5)           01.  One year or less

1119(#6)

1122(#7)           97.  97 years or more

1125(#8)

1128(#9)           98.  DK

1131(#10)          99.  NA

 

00.  Inap, no further persons listed

 

 

 

[V1132: BUILD = 0]

 

 

 

 

1133        A2.    I'd like to begin by asking you about the circumstances of your (husband's/wife's) death.  How old was your (husband/

wife) when (he/she) died?                              

 

Code YEARS (40-97)

 

97.  97 years or more

 

98.  DK

99.  NA

 


 

                                      

SECTION A: HOUSEHOLD LISTING AND CIRCUMSTANCE OF THE DEATH

 

 

VAR #

 

1201        A3.    What was the cause of (his/her) death?  (IF ACCIDENT,

1202               PROBE:  What kind of accident? AND OBTAIN BRIEF

1203               DESCRIPTION OF CIRCUMSTANCES)                          

 

Use HEALTH CONDITION MASTER CODE

 

000.  Inap, no further mention

 

 

 

1204        A4.    INTERVIEWER CHECKPOINT                  

┌──────────────┐

│0 in 1205-1241├─────1.  CAUSE OF DEATH WAS ACCIDENT, MURDER OR SUICIDE

└──────────────┘

┌──────────────┐

│0 in 1301-1344├─────2.  ALL OTHERS

└──────────────┘

 

 

 

1205        A5.    How long before your (husband's/wife's) death did you realize that (he/she) was going to die?  (RECORD NUMBER OR

MARK BOX)                                              

 

  Code # (01-60), except:

┌──────────────┐

│0 in 1206-1207├─────96.  NO WARNING/MINUTES

└──────────────┘

  98.  DK

  99.  NA

 

  00.  Inap, 1 in 1204

 

 

 

1206        A5.    TIME UNIT                                              

 

1.  HOURS

2.  DAYS

3.  WEEKS

4.  MONTHS

5.  YEARS

 

9.  NA

 

0.  Inap, 1 in 1204; 96 in 1205

 

 

 

 

 

 

 

 

 


 

 

 

 

1207        A6.    Was the cause of (his/her) death an ongoing condition that you knew about before, or did you only learn about it for

the first time shortly before (he/she) died?           

┌─────────┐

│0 in 1208├─────────1.  ONGOING

└─────────┘

 2.  FIRST TIME

 

 8.  DK

 9.  NA

 

 0.  Inap, 1 in 1204; 96 in 1205

 

 

 

1208        A7.    Did (he/she) have any serious ongoing health problems?

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204; 1 in 1207

 

 

 

1209        A8.    Was your (husband/wife) aware that (he/she) was dying?

 

 1.  YES

┌──────────────┐

│0 in 1210-1212├─────5.  NO

└──────────────┼

               ├─────8.  DK

               └─────9.  NA

 

 0.  Inap, 1 in 1204

 

 

 

1210        A9.    Did (he/she) seem to be at peace with the idea of dying?

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204; 5, 8-9 in 1209

 

 

 

1211        A10.   Did you and your (husband/wife) talk about the fact that

(he/she) might die?                                    

 

1.  YES

5.  NO

 

8.  DK


9.  NA

 

0.  Inap, 1 in 1204; 5, 8-9 in 1209

 

 

 

1212        A11.   Did you and (he/she) talk about how you would deal with

being on your own once (he/she) was gone?              

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204; 5, 8-9 in 1209

 

 

 

1213        A12.   INTERVIEWER CHECKPOINT                  

 

  1.  SPOUSE HAD (SERIOUS) ONGOING CONDITION

┌──────────────┐

│0 in 1214-1224├─────2.  ALL OTHERS

└──────────────┘

  0.  Inap, 1 in 1204

 

 

 

1214        A13.   Did you yourself have to provide physical care to your

(husband/wife) in the 6 months before (he/she) died?   

 

  1.  YES

┌──────────────┐

│0 in 1215-1224├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 1204; 2 in 1213

 

 

 

1215        A13a.  During the last 6 months of (his/her) life, about how many hours a week did you spend providing physical care for

your (husband/wife)?                                   

 

Code HOURS (01-95)

 

95.  95 hours or more

 

98.  DK

99.  NA

 

00.  Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214

 

 

 

1216        A13b.  For how many weeks, months, or years did you provide such

care?--WEEKS                                           

 


Code WEEKS (00-95)

 

98.   DK

99.   NA

 

00.   WEEKS not given; Inap, 1 in 1204; 2 in 1213;

                         5, 8-9 in 1214

 

 

 

1217        A13b.  For how many weeks, months, or years did you provide such

care?--MONTHS                                          

 

Code MONTHS (00-60)

 

98.   DK

99.   NA

 

00.   MONTHS not given; Inap, 1 in 1204; 2 in 1213;

                         5, 8-9 in 1214

 

 

 

1218        A13b.  For how many weeks, months, or years did you provide such

care?--YEARS                                           

 

Code YEARS (00-20)

 

98.   DK

99.   NA

 

00.   YEARS not given; Inap, 1 in 1204; 2 in 1213;

                         5, 8-9 in 1214

 

 

 

1219        A13c.  What kind of physical care did you provide?            

1220

1221               MEDICAL

 

11.   Medical care; gave medication/shots; changed dressings/tubes/bags; monitored machines

 

 

 

PERSONAL NEEDS (exc. 11)

 

21.   Elimination; helped with/took to bathroom; cleaned up after

22.   Bathing; gave baths; helped with bathing

23.   Feeding; fed spouse, prepared meals, etc.

24.   Help move around house; lifting; exercise/walking

25.   Getting dressed

 

 

 

 

29.   Other personal needs care: brushing hair (or teeth); giving rubdowns, shaving, etc.

 

 

 


 

 

 

 

 

 

 

 

 

 

1219        A13c.  Continued                                              

1220

1221               31.   Transportation; took spouse to doctor or other appointment; "drove him everywhere"

 

 

 

┌────────────┐

│Low Priority├─────95.   "Everything"; "complete care"

└────────────┘

┌─────────┐

│Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.   Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214;

      no further mention

 

 

 

1222        A14.   (RB, P. 1)  During the 6 months before (he/she) died, how stressful was it for you to care for (him/her) or to arrange for (his/her) care?  Was it very stressful, quite stressful, somewhat stressful, not too stressful, or not

at all stressful?                                      

 

1.  VERY STRESSFUL

2.  QUITE STRESSFUL

3.  SOMEWHAT STRESSFUL

4.  NOT TOO STRESSFUL

5.  NOT AT ALL STRESSFUL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214

 

 

 

1223        A15.   How much did caring for your (husband/wife) while (he/she) was ill keep you from carrying out other responsibilities in your life?  Would you say a great deal, somewhat, a

little, or not at all?                                 

 

1.  A GREAT DEAL

2.  SOMEWHAT

3.  A LITTLE

4.  NOT AT ALL

 

8.  DK

9.  NA


0.  Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214

 

 

 

 

 

 

 

 

 

 

 

1224        A16.   (RB, P. 2)  Please tell me how true the following statement is.  My (husband's/wife's) illness was physically painful for (him/her).  Is this very true,

somewhat, a little, or not true at all?                

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214

 

 

 

A17.   (RB, [STILL ON] P. 2)  Please tell me how true each of the following statements is in the case of your (husband/wife).

 

 

 

1225        A17a.  In the weeks before (his/her) death, things between my      (husband/wife) and me were going well.  Is this very true,

somewhat, a little, or not true at all?                

 

1.  VERY TRUE            ┌───────────────┐

2.  SOMEWHAT TRUE                        │USE SAME CODE 

3.  A LITTLE TRUE                        │FOR V1226-1228 │

4.  NOT TRUE AT ALL             └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204

 

 

 

1226        A17b.  My (husband/wife) lived a full life.                   

 

 

1227        A17c.  During (his/her) lifetime my (husband/wife) was able to

achieve just about everything (he/she) hoped to achieve.   

 

 

1228        A17d.  I believe that my (husband/wife) is now in a better place

than (he/she) was on this earth.                       


 

 

1229        A18.   Were you there with your (husband/wife) at the moment when

(he/she) died?                                         

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204

 

 

 

 

1230        A19.   (RB, P. 3) Do you feel that your (husband/wife) did things that may have contributed to (his/her) death?  Would you say no, not at all; yes, a little; yes, somewhat; or yes,

a great deal?                                          

┌──────────────┐

│0 in 1231-1232├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

              

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 1204

 

 

 

                                                               Rev. 11/2/90

 

 

1231        A19a.  What did (he/she) do that may have contributed to

1232               (his/her) death?                                       

 

11.   Smoking

12.   Alcohol/drug use

13.   Improper eating habits; wouldn't eat right foods/ follow diet

14.   Lack of exercise; just sat around

 

 

 

19.   Put off/refused medical care; "wouldn't follow doctor's orders"--n.e.c.

 

 

 

21.   Emotional stress (self-induced or caused by others)

22.   Physical stress/overwork; worked too hard; "pushed himself too much"

 

 

 

┌─────────┐

│Make Card├────────97.   Other

└─────────┘


98.   DK

99.   NA

 

00.   Inap, 1 in 1204; 1, 8-9 in 1230; no further

      mention

 

 

 

 

 

 

 

 

 

 

 

 

 

 

1233        A20.   (RB, STILL ON P. 3) Do you feel that anyone else did things that may have contributed to your (husband's/ wife's) death?  (Would you say no, not at all; yes, a

little; yes, somewhat; or yes, a great deal?)          

┌──────────────┐

│0 in 1234-1241├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

              

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 1204

 

 

 

1234(#1)    A20a.  Who do you feel may have contributed to the death?     

1238(#2)

  Use RELATIONSHIP MASTER CODE, except:

┌──────────────┐

│0 in 1239-1241├─────00.  No person #2 listed; Inap, 1 in 1204; 1, 8-9

└──────────────┘               in 1233

 

 

 

                                                               Rev. 11/2/90

 

1235(#1)    A20b.  What did (PERSON #1) do?   

1236(#1)    A20d.  What did (PERSON #2) do?                               

 

1239(#2)

1240(#2)

 

 

 

21.   Caused emotional stress (exc. 41); son took drugs, was in jail; conflicts with (person at A20a)

 

23.   Employment situation; dangerous/unhealthy working conditions

 


 

41.   Doctor/hospital incompetent/negligent/unhelpful

 

 

 

 

91.   Person shot/assaulted spouse (incl. in war)

 

 

 

┌─────────┐

│Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.   Inap, 1 in 1204; 1, 8-9 in 1233; 00 in 1238;

      no further mention

 

 

 

 

 

1237(#1)    A20c.  (RB, STILL ON P. 3) Do you blame (PERSON #1) for your

1241(#2)           (husband's/wife's) death?

A20e.  (RB, STILL ON P. 3) Do you blame (PERSON #2) for your

(husband's/wife's) death?

(Would you say no, not at all; yes, a little; yes,

somewhat; or yes, a great deal?)                       

 

1.  NO, NOT AT ALL

2.  YES, A LITTLE

3.  YES, SOMEWHAT

4.  YES, A GREAT DEAL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204; 1, 8-9 in 1233; 00 in 1238

 

 


                                      

 

SECTION A: HOUSEHOLD LISTING AND CIRCUMSTANCE OF THE DEATH

 

 

VAR #

 

┌─────────────────────────────────────────┐

│SPOUSE DIED BY ACCIDENT/ MURDER/ SUICIDE │

└─────────────────────────────────────────┘

 

 

1301        A21.   On what month, day and year did the (accident/murder/

suicide) happen?--MONTH                                

 

Code MONTH (01-12)

 

98.  DK

99.  NA

 

00.  Inap, 2 in 1204

 

 

 

1302        A21.   On what month, day and year did the (accident/murder/

suicide) happen?--DAY                                  

 

Code DAY (01-31)

 

98.  DK

99.  NA

 

00.  Inap, 2 in 1204

 

 

 

1303        A21.   On what month, day and year did the (accident/murder/

suicide) happen?--YEAR                                 

 

Code YEAR (1987-1995)

 

9998.  DK

9999.  NA

 

0000.  Inap, 2 in 1204

 

 

 

1304        A22.   INTERVIEWER CHECKPOINT                  

 

  1.  CAUSE WAS ACCIDENT

┌──────────────┐

│0 in 1305-1307├─────2.  ALL OTHERS

└──────────────┘

  0.  Inap, 2 in 1204

 

 

 

 

 

 

 


 

 

 

1305        A22a.  Was anyone else involved in the accident?              

 

  1.  YES

┌──────────────┐

│0 in 1306-1307├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 2 in 1204 or 1304

 

 

 

1306        A22b.  Who was that?  I don't need a specific name.           

1307

Use RELATIONSHIP MASTER CODE

 

00.   Inap, 2 in 1204 or 1304; 5, 8-9 in 1305; no

      further mention

 

 

 

1308        A23.   Was (he/she) still alive when you first heard about the

incident?                                              

 

  1.  YES

┌──────────────┐

│0 in 1309-1314├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 2 in 1204

 

 

 

1309        A23a.  How long after that did (he/she) die?   

 

Code # (01-60), except:

 

98.  DK

99.  NA

 

00.  Inap, 2 in 1204; 5, 8-9 in 1308

 

 

 

1310        A23a.  TIME UNIT                                              

 

1.  HOURS

2.  DAYS

3.  WEEKS

4.  MONTHS

 

9.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1308

 


 

 

 

 

 

 

1311        A24.   Was your (husband/wife) aware that (he/she) was dying? 

 

  1.  YES

┌──────────────┐

│0 in 1312-1314├─────5.  NO

└──────────────┤

               ├─────8.  DON'T KNOW

               └─────9.  NA

 

  0.  Inap, 2 in 1204; 5, 8-9 in 1308

 

 

 

1312        A25.   Did (he/she) seem to be at peace with dying?           

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1308 or 1311

 

 

 

1313        A26.   Did you and your (husband/wife) talk about the fact that

(he/she) might die?                                    

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1308 or 1311

 

 

 

1314        A27.   Did you and (he/she) talk about how you would deal with

being on your own once (he/she) was gone?              

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1308 or 1311

 

 

 

1315        A28.   Before the (accident/murder/suicide) did your (husband/

wife) have any serious ongoing health problems?        

 


  1.  YES

┌──────────────┐

│0 in 1316-1326├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 2 in 1204

 

 

 

1316        A29.   In the six months before (he/she) died, did you yourself have to provide physical care to (him/her) because of a

serious ongoing health problem?                        

 

  1.  YES

┌──────────────┐

│0 in 1317-1326├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 2 in 1204; 5, 8-9 in 1315

 

 

 

1317        A29a.  About how many hours a week did you spend providing physical care for (him/her) during the last six months of

(his/her) life?                                        

 

Code HOURS (01-95)

 

95.  95 hours or more

 

98.  DK

99.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1315 or 1316

 

 

 

1318        A29b.  For how many weeks, months, or years did you provide such

care?--WEEKS                                           

 

Code WEEKS (00-95)

 

98.   DK

99.   NA

 

00.   WEEKS not given; Inap, 2 in 1204; 5, 8-9

in 1315 or 1316

 

 

 

1319        A29b.  For how many weeks, months, or years did you provide such

care?--MONTHS                                          

 

Code MONTHS (00-60)

 

98.   DK

99.   NA


00.   MONTHS not given; Inap, 2 in 1204; 5, 8-9

in 1315 or 1316

 

 

 

 

 

 

 

 

 

 

 

 

 

1320        A29b.  For how many weeks, months, or years did you provide such

care?--YEARS                                           

 

Code YEARS (00-20)

 

98.   DK

99.   NA

 

00.   YEARS not given; Inap, 2 in 1204; 5, 8-9

in 1315 or 1316

 

 

 

1321        A29c.  What kind of physical care did you provide?            

1322

1323               MEDICAL

 

11.   Medical care; gave medication/shots; changed dressings/tubes/bags; monitored machines

 

 

 

 

 

PERSONAL NEEDS (exc. 11)

 

21.   Elimination; helped with/took to bathroom; cleaned up after

22.   Bathing; gave baths; helped with bathing

23.   Feeding; fed spouse, prepared meals, etc.

24.   Help move around house; lifting; exercise/walking

25.   Getting dressed

 

 

 

 

29.   Other personal needs care: brushing hair (or teeth); giving rubdowns, shaving, etc.

 

 

 

 

 

 

 

 

 

 


 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

1321        A29c.  Continued                                              

1322

1323               31.   Transportation; took spouse to doctor or other appointment; "drove him everywhere"

 

 

 

 

 

┌────────────┐

│Low Priority├─────95.   "Everything"; "complete care"

└────────────┘

┌─────────┐

│Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.  Inap, 2 in 1204; 5, 8-9 in 1315 or 1316; no

     further mention

 

 

 

1324        A30.   (RB, P. 4)  During the 6 months before (he/she) died, how stressful was it for you to care for (him/her) or to arrange for (his/her) care?  Was it very stressful, quite stressful, somewhat stressful, not too stressful, or not

at all stressful?                                      

 

1.  VERY STRESSFUL

2.  QUITE STRESSFUL

3.  SOMEWHAT STRESSFUL

4.  NOT TOO STRESSFUL

5.  NOT AT ALL STRESSFUL

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1315 or 1316

 

 

 

1325        A31.   How much did caring for your (husband/wife) during the 6 months before (he/she) died keep you from carrying out other responsibilities in your life?  Would you say

a great deal, somewhat, a little, or not at all?       


1.  A GREAT DEAL

2.  SOMEWHAT

3.  A LITTLE

4.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1315 or 1316

 

 

 

 

 

 

 

1326        A32.   (RB, P. 5)  Please tell me how true the following statement is.  My (husband's/wife's) condition was physically painful for (him/her).  Is this very true,

somewhat, a little, or not true at all?                

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1315 or 1316

 

 

 

A33.   (RB, [STILL ON] P. 5)  Please tell me how true each of the following statements is in the case of your (husband/wife).

 

1327        A33a.  In the weeks before (his/her) death, things between my      (husband/wife) and me were going well.  Is this very true,

somewhat, a little, or not true at all?                

 

1.  VERY TRUE            ┌───────────────┐

2.  SOMEWHAT TRUE                        │USE SAME CODE 

3.  A LITTLE TRUE                        │FOR V1328-1330 │

4.  NOT TRUE AT ALL             └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204

 

 

 

1328        A33b.  My (husband/wife) lived a full life.                   

 

 

1329        A33c.  During (his/her) lifetime my (husband/wife) was able to

achieve just about everything (he/she) hoped to achieve.   

 

 

1330        A33d.  I believe that my (husband/wife) is now in a better place


than (he/she) was on this earth.                       

 

 

 

1331        A34.   INTERVIEWER CHECKPOINT                  

 

1.  CAUSE OF DEATH WAS ACCIDENT OR MURDER

┌──────────────┐

│0 in 1332-1334├─────    2.  CAUSE WAS SUICIDE

└──────────────┘

0.  Inap, 2 in 1204

 

 

 

 

 

 

 

 

 

1332        A35.   (RB, P. 6) Do you feel that your (husband/wife) did things that may have contributed to (his/her) death?  Would you say no, not at all; yes, a little; yes, somewhat; or yes,

a great deal?                                          

┌──────────────┐

│0 in 1333-1334├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

               

               ├─────8.  DK

               └─────9.  NA

 

0.  Inap, 2 in 1204 or 1331

 

 

 

1333        A35a.  What did (he/she) do that contributed to (his/her) death?

1334

11.   Smoking

12.   Alcohol/drug use

13.   Improper eating habits; wouldn't eat right foods/ follow diet

 

 

 

 

 

19.   Put off/refused medical care; "wouldn't follow doctor's orders"--n.e.c.

 

 

21.   Emotional stress (self-induced or caused by others)

22.   Physical stress/overwork; worked too hard; "pushed himself too much"

23.   Employment situation--n.e.c.; dangerous/unhealthy working conditions

 

 

 

┌─────────┐

│Make Card├────────97.   Other


└─────────┘

98.   DK

99.   NA

 

00.  Inap, 2 in 1204 or 1331; 1, 8-9 in 1332; no

     further mention

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

1335        A36.   INTERVIEWER CHECKPOINT                  

 

  1.  CAUSE OF DEATH WAS ACCIDENT OR SUICIDE

┌──────────────┐

│0 in 1336-1344├─────2.  CAUSE OF DEATH WAS MURDER

└──────────────┘

  0.  Inap, 2 in 1204

 

 

 

1336        A37.   (RB, STILL ON P. 6) Do you feel that anyone else did things that may have contributed to your (husband's/ wife's) death?  (Would you say no, not at all; yes, a

little; yes, somewhat; or yes, a great deal?)          

┌──────────────┐

│0 in 1337-1344├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

               

               ├─────8.  DK

               └─────9.  NA

 

0.  Inap, 2 in 1204 or 1335

 

 

 

1337(#1)    A37a.  Who do you feel may have contributed to the death?     

1341(#2)

Use RELATIONSHIP MASTER CODE, except:

┌──────────────┐

│0 in 1342-1344├─────00.  No person #2 listed; Inap, 2 in 1204 or 1335;

└──────────────┘          1, 8-9 in 1336

 

 

 

                                                               Rev. 11/2/90

1338(#1)    A37b.  What did (PERSON #1) do?   

1339(#1)    A37d.  What did (PERSON #2) do?                               

 


1342(#2)

1343(#2)           21.   Caused emotional stress (exc. 41); son took drugs, was in jail; conflicts with (person at A20a)

 

23.   Employment situation; dangerous/unhealthy working conditions

 

 

41.   Doctor/hospital incompetent/negligent/unhelpful

 

 

 

91.   Person shot/assaulted spouse (incl. in war)

 

┌─────────┐

│Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.   Inap, 2 in 1204 or 335; 1, 8-9 in 1336;

      00 in 1341; no further mention

 

 

 

1340(#1)    A37c.  (RB, STILL ON P. 6) Do you blame (PERSON #1) for your

1344(#2)           (husband's/wife's) death?

A37e.  (RB, STILL ON P. 6) Do you blame (PERSON #2) for your

(husband's/wife's) death?

(Would you say no, not at all; yes, a little; yes,

somewhat; or yes, a great deal?)                       

 

1.  NO, NOT AT ALL

2.  YES, A LITTLE

3.  YES, SOMEWHAT

4.  YES, A GREAT DEAL

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204 or 1335; 1, 8-9 in 1336;

    00 in 1341

 

 


 

                                      

SECTION B: GRIEF

 

 

VAR #

 

 

1401        B1.    INTERVIEWER CHECKPOINT                                 

 

  1.  SPOUSE HAD SERIOUS ONGOING CONDITION BEFORE                          (HE/SHE) DIED 

┌──────────────┐

│0 in 1402-1406├─────2.  ALL OTHERS

└──────────────┘

 

 

 

B2.    (RB, P. 7) For the next questions, please think about the time when your (husband/wife) was alive but in poor health.

 

1402        B2a.   At any time while your (husband/wife) was still alive, did you ever find that you couldn't get thoughts of (him/her) or (his/her) condition out of your mind even when you wanted to?  Would you say no, never; yes, but rarely; yes,

sometimes; or yes, often?                              

 

1.  NO, NEVER            ┌───────────────┐

2.  YES, BUT RARELY                      │USE SAME CODE 

3.  YES, SOMETIMES                       │FOR V1403-1406 │

4.  YES, OFTEN            └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1401

 

 

1403        B2b.   Did you ever find yourself going over and over what was

happening?                                             

 

 

1404        B2c.   While (he/she) was still living, did you ever find yourself searching to make sense or find some meaning in

your (husband's/wife's) situation?                     

 

 


 

 

1405        B2d.   While (he/she) was still alive, did you ever have feelings of grief or sadness over the thought of losing your

(husband/wife)?                                        

 

 

1406        B2e.   Did you ever cry about what was happening to (him/her)?

 

 

 

B3.    (RB, [STILL ON] P. 7)  Now, I have a list of feelings and emotions that some people still experience many months after the loss of their husband or wife.  Please think about the past month.

 

1407        B3.    During the past month, have you felt afraid of what lies ahead for you? (Would you say no, never; yes, but rarely;

yes, sometimes; or yes, often)?                        

 

1.  NO, NEVER            ┌───────────────┐

2.  YES, BUT RARELY                      │USE SAME CODE 

3.  YES, SOMETIMES                       │FOR V1408-1429 │

4.  YES, OFTEN            └───────────────┘

 

8.  DK

9.  NA

 

 

1408        B4.    Have you felt extremely anxious and unsettled during the

past month?                                            

 

 

1409        B5.    During the past month, have you felt worried about how you

would manage your day-to-day affairs?                  

 

 

1410        B6.    Has life seemed empty?                                 

 

 

1411        B7.    During the past month, did you feel amazed at your

strength?                                              

 

 

1412        B8.    Did you feel you were coping well with the loss of your

(husband/wife)?                                        

 

 

1413        B9.    During the past month, did you feel proud of how well you

were managing?                                         

 

1414        B10.   Have you felt as though you were in a state of shock?  

 

 

1415        B11.   During the past month, have you felt as though you


couldn't believe what was happening?                   

 

 

1416        B12.   Have you felt emotionally numb?                        

 

 

1417        B13.   During the past month, have you felt resentful or bitter

about your (husband's/wife's) death?                   

 

 

 

 

1418        B14.   Have you felt that the death of your (husband/wife) was

unfair?                                                

 

 

1419        B15.   In the past month, have you felt anger toward God?     

 

 

1420        B16.   Have you felt empty inside, like an important part of you

is missing?                                            

 

 

1421        B17.   In the past month, have you felt that life has lost its

meaning?                                               

 

 

1422        B18.   In the last month, have you had any regrets about anything that happened between you and your (husband/wife) while

(he/she) was still alive?                              

 

 

1423        B19.   Have you felt as though you did all you could have done

for your (husband/wife) before (his/her) death?        

 

 

1424        B20.   During the past month, have you had any regrets about

things you did or failed to do while (he/she) was alive?     

 

 

1425        B21.   In the past month, have you heard a sound that you thought

might be (him/her)?                                    

 

 

1426        B22.   In the past month, have you sensed the presence of your

(husband/wife?)                                        

 

1427        B23.   To help you make decisions, have you thought about what

your (husband/wife) would have done?                   

 

 

1428        B24.   During the past month, have you felt drawn to places and


things that make you feel close to your (husband/wife)?

 

 

1429        B25.   Have you found yourself longing to have (him/her) with

you?                                                   

 

 

 

1430        B26.   (RB, STILL ON P. 7)  People have different reactions to the death of a husband or wife.  During the past month, have you had painful waves of missing your (husband/wife)?  (Would you say no, never; yes, but rarely; yes, sometimes;

or yes, often)?                                        

 

  1.  NO, NEVER

┌──────────────┐

│0 in 1431-1432├─────2.  YES, BUT RARELY

└──────────────┼───  3.  YES, SOMETIMES

               ├─────4.  YES, OFTEN

              

               ├─────8.  DK

               └─────9.  NA

 

 

 

1431        B26a.  (RB, STILL ON P. 7)  Has it happened in the last 6 months?--(no, never; yes, but rarely; yes, sometimes; or

yes, often)?                                           

 

 1.  NO, NEVER

┌─────────┐

│0 in 1432├─────────2.  YES, BUT RARELY

└─────────┼─────────3.  YES, SOMETIMES

          ├─────────4.  YES, OFTEN

         

          ├─────────8.  DK

          └─────────9.  NA

 

 0.  Inap, 2-4, 8-9 in 1430

 

 

 

[V1432: BUILD = 0]

 

 

 

1433        B27.   (RB, STILL ON P. 7)  During the past month, have you experienced feelings of intense pain or grief over the loss of your (husband/wife)--(no, never; yes, but rarely;

yes, sometimes; or yes, often)?                        

 

  1.  NO, NEVER

┌──────────────┐

│0 in 1434-1435├─────2.  YES, BUT RARELY

└──────────────┼─────3.  YES, SOMETIMES

               ├─────4.  YES, OFTEN

              

               ├─────8.  DK

               └─────9.  NA

 


 

[1V434: BUILD = 0]

 

 

 

1435        B27a.  (RB, STILL ON P. 7)  At any time since (he/she) died, did you ever experience feelings of intense pain or grief over (his/her) loss--(no,never; yes, but rarely; yes,

sometimes; or yes,often)?                              

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 2-4, 8-9 in 1433

 

 

 

[V1436-V1438: BUILD = 0]

 


 

 

SECTION C:  PARENTING

 

 

VAR #

 

The next questions are about children.

 

1501        C1.    Do you have any children who are not living here with you at the present time?  Please include adopted children or

stepsons and stepdaughters not living here.            

 

 1.  YES

┌─────────┐

│0 in 1502├─────────5.  NO, NO CHILDREN ELSEWHERE

└─────────┤  

          └─────────9.  NA

        

 

 

1502        C1a.   How many do not live with you?          

 

Code NUMBER (01-20)

 

98.  DK

99.  NA

 

00.  Inap, 5 or 9 in 1501

 

 

 

1503        C2.    Altogether, how many living children do you have?  Again, please include any adopted children or stepsons and

stepdaughters you may have.                            

 

  Code NUMBER (01-20), except:

 

  98.  DK

  99.  NA

┌──────────────┐

│0 in 1504-1525├─────00.  NONE

└──────────────┘


 

 

1504        C2a.   INTERVIEWER CHECKPOINT                                 

 

 1.  R ONLY HAS ONE CHILD             

┌─────────┐

│0 in 1505├─────────2.  ALL OTHERS

└─────────┘

 0.  Inap, 00 in 1503

 

 

 

1505        C2b.   Is this a son or daughter?                             

 

1.  SON

2.  DAUGHTER

 

9.  NA

 

0.  Inap, 00 in 1503; 2 in 1504

 

 

 

1506        C3.    INTERVIEWER CHECKPOINT                  

┌──────────────┐

│0 in 1507-1510├─────1.  R HAS NO CHILDREN LIVING ELSEWHERE

└──────────────┘

  2.  R HAS ONLY ONE CHILD LIVING ELSEWHERE

  3.  R HAS MORE THAN ONE CHILD LIVING ELSEWHERE

 

  9.  NA

 

  0.  Inap, 00 in 1503

 

 

 

1507        C4/C5. Think about your (son/daughter/children) who (does/do) not live with you.  Does (he/she/how many of your children)

live within an hour's drive of here?                   

01.  One (to C4); YES (to C5)

 

02-20.

 

96.  NONE (to C4); NO (to C5)

 

98.  DK

99.  NA

 

00.  Inap, 00 in 1503; 1 in 1506

 

 

 

 

 

 

 

 

 

 

 

 

 


 

 

 

 

1508        C4a/C5a.  (RB, P. 8) In the past 6 months, how often did you have

contact with your (son/daughter/at least one of your children) who (doesn't/do not) live with you, either in person, by phone or by mail.  Would you say more than once a week, about once a week, 1 to 3 times a month, less than

once a month or never?                                 

 

1.  MORE THAN ONCE A WEEK

2.  ABOUT ONCE A WEEK

3.  1 TO 3 TIMES A MONTH

4.  LESS THAN ONCE A MONTH

5.  NEVER

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503; 1 in 1506

 

 

 

1509        C4b/C5b.  Compared to when your (husband/wife) was alive, do you

have more interest, less interest, or about the same

amount of interest in having contact with your children?  

 

1.  MORE

3.  SAME

5.  LESS

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503; 1 in 1506

 

 

 

1510        C4c/C5c.  Have your children shown more interest, less interest,

or about the same amount of interest in having contact

with you?                                              

 

1.  MORE

3.  SAME

5.  LESS

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503; 1 in 1506

 

 

 

1511        C6.    INTERVIEWER CHECKPOINT                  

 

1.  R HAS ONLY ONE CHILD

2.  R HAS TWO OR MORE CHILDREN

 

0.  Inap, 00 in 1503