The Changing Lives of Older Couples Study

Wave I Widow Follow-up Survey

CODEBOOK

 

Facesheet

 

                                      

VAR #

 

  1001      FS.    Seq.#/CASE ID                                          

 

 

 

  1002      FS.    Respondent # -- 1st 4 digits (CLOC ID#)                

 

 

 

  1003      FS.    Respondent # -- last 2 digits, preprinted              

 

 

 

[V1004:  BUILD 6-digit Respondent ID# (V1002+V1003)]

 

 

                                                              Rev. 10/24/91

  1005      FS.    Result Code                                            

 

01.  Complete I'v

03.  Complete Telephone I'v

05.  Partial I'v

07.  Partial Telephone I'v

 

 

 

  1006      FS.    Respondent "history":  2 digits                        

 

Code 1st 2-digit # precoded on Facesheet

 

 

 

[V1007 - V1010: BUILD = 0]


 

 

1011        FS1.   INTERVIEWER's ID# (4 digits from label)                

 

 

 

 1012       FS2.   Interview No.: (2 digits from box)                     

 

99.  NA

 

 

 

 1013       FS3.   Date of Interview--MONTH                               

 

Code MONTH (01-12)

 

 

 

 1014       FS3.   Date of Interview--DAY                                 

 

Code DAY (01-31)

 

 

 

 1015       FS3.   Date of Interview--YEAR                                

 

Code 4-digit YEAR (1988-1995)

 

 

 

 1016       FS4.   Length of Interview                                    

 

Code # of MINS (001-240)

 

 


 

 

SECTION A:  HOUSEHOLD LISTING AND CIRCUMSTANCE OF THE DEATH

 

 

A1.    First, I need to list all the people who live here.  I don't need names, just the age, sex and relationship to you for each person.  Let's start with you.  How old are you?

 

Now I need the age, sex and relationship to you of any other adults and children who live here.

 

1101        A1.    SUMMARY # Persons in HOUSEHOLD                         

┌──────────────┐

0 in 1105-1131├─────01.  One            ┌──────────────┐

└──────────────┘                                            Code # persons

┌──────────────┐                                            listed in grid

0 in 1108-1131├─────02.  Two                               (01-20).     

└──────────────┘                                                      └──────────────┘

┌──────────────┐

0 in 1111-1131├─────03.  Three

└──────────────┘

┌──────────────┐

0 in 1114-1131├─────04.  Four

└──────────────┘

┌──────────────┐

0 in 1117-1131├─────05.  Five

└──────────────┘

┌──────────────┐

0 in 1120-1131├─────06.  Six

└──────────────┘

┌──────────────┐

0 in 1123-1131├─────07.  Seven

└──────────────┘

┌──────────────┐

0 in 1126-1131├─────08.  Eight

└──────────────┘

┌──────────────┐

0 in 1129-1131├─────09.  Nine

└──────────────┘

  10.  Ten

   .

   .

   .

  20.  Twenty

 

  99.  NA


 

 

1102(#1)    A1(a). MEMBERS OF THE HOUSEHOLD BY RELATIONSHIP TO RESPONDENT 

1105(#2)

1108(#3)           Partner/Spouse

1111(#4)          

1114(#5)           01.   RESPONDENT

1117(#6)           02.   Spouse of R

1120(#7)           03.   Partner of R

1123(#8)

1126(#9)           Child

1129(#10)

10.   Child(ren), NA sex (incl. foster child/stepchild)

11.   Son (incl. adopted)

12.   Daughter (incl. adopted)

13.   Stepson (incl. partner's son)

14.   Stepdaughter (incl. partner's daughter)

15.   Son-in-law (incl. daughter's partner)

16.   Daughter-in-law (incl. son's partner)

17.   Foster son

18.   Foster daughter

 

Parent/Grandparent

 

20.   Parent, NA sex ("parents" code 21, 22)

21.   Father (incl. adoptive father)

22.   Mother (incl. adoptive mother)

23.   Stepfather

24.   Stepmother

25.   Father-in-law (incl. partner's father); ("my in-laws" code 25 and 26)

26.   Mother-in-law (incl. partner's mother)

27.   Grandparent; great-grandparent, NA sex

28.   Grandfather; great-grandfather

29.   Grandmother; great-grandmother

 

Sibling/Sibling-in-law

 

31.   Brother

32.   Sister

33.   Stepbrother

34.   Stepsister

35.   Brother-in-law

36.   Sister-in-law


 

 

1102(#1)    A1(a). Continued                                              

1105(#2)

1108(#3)           Other Relatives

1111(#4)          

1114(#5)           40.   Grandchild/great grandchild, NA sex

1117(#6)           41.   Grandson; great grandson

1120(#7)           42.   Granddaughter; great granddaughter

1123(#8)           43.   Nephew

1126(#9)           44.   Niece

1129(#10)          45.   Uncle; great-uncle

46.   Aunt; great-aunt

47.   Cousin

48.   Other "in-laws"

┌─────────┐

Make Card├────────49.   Other relative

└─────────┘

 

 

 

Unrelated Persons

 

62.   Housemate/roommate

63.   Household employee; live-in sitter; housekeeper

64.   Friend

66.   Person related to R's partner (exc. child or parent)

67.   Roomer; boarder

 

 

 

┌─────────┐

Make Card├────────97.   Other unrelated person

└─────────┘

98.   DK

99.   NA

 

00.   Inap, no further persons in HU

 

 

 

 

 

1103(#1)    A1(b). SEX                                                    

1106(#2)

1109(#3)           1.  Male

1112(#4)           2.  Female

1115(#5)

1118(#6)           9.  NA

1121(#7)

1124(#8)           0.  Inap, no further persons listed

1127(#9)

1130(#10)

 

 

 

 

 

 

 

 

 

 


 

 

 

1104(#1)    A1(c). AGE                                                    

1107(#2)

1110(#3)           Code AGE (01-97)

1113(#4)

1116(#5)           01.  One year or less

1119(#6)

1122(#7)           97.  97 years or more

1125(#8)

1128(#9)           98.  DK

1131(#10)          99.  NA

 

00.  Inap, no further persons listed

 

 

 

[V1132: BUILD = 0]

 

 

 

 

1133        A2.    I'd like to begin by asking you about the circumstances of your (husband's/wife's) death.  How old was your (husband/

wife) when (he/she) died?                              

 

Code YEARS (40-97)

 

97.  97 years or more

 

98.  DK

99.  NA

 


 

                                      

SECTION A: HOUSEHOLD LISTING AND CIRCUMSTANCE OF THE DEATH

 

 

VAR #

 

1201        A3.    What was the cause of (his/her) death?  (IF ACCIDENT,

1202               PROBE:  What kind of accident? AND OBTAIN BRIEF

1203               DESCRIPTION OF CIRCUMSTANCES)                          

 

Use HEALTH CONDITION MASTER CODE

 

000.  Inap, no further mention

 

 

 

1204        A4.    INTERVIEWER CHECKPOINT                  

┌──────────────┐

│0 in 1205-1241├─────1.  CAUSE OF DEATH WAS ACCIDENT, MURDER OR SUICIDE

└──────────────┘

┌──────────────┐

│0 in 1301-1344├─────2.  ALL OTHERS

└──────────────┘

 

 

 

1205        A5.    How long before your (husband's/wife's) death did you realize that (he/she) was going to die?  (RECORD NUMBER OR

MARK BOX)                                              

 

  Code # (01-60), except:

┌──────────────┐

│0 in 1206-1207├─────96.  NO WARNING/MINUTES

└──────────────┘

  98.  DK

  99.  NA

 

  00.  Inap, 1 in 1204

 

 

 

1206        A5.    TIME UNIT                                              

 

1.  HOURS

2.  DAYS

3.  WEEKS

4.  MONTHS

5.  YEARS

 

9.  NA

 

0.  Inap, 1 in 1204; 96 in 1205

 

 

 

 

 

 

 

 

 


 

 

 

 

1207        A6.    Was the cause of (his/her) death an ongoing condition that you knew about before, or did you only learn about it for

the first time shortly before (he/she) died?           

┌─────────┐

│0 in 1208├─────────1.  ONGOING

└─────────┘

 2.  FIRST TIME

 

 8.  DK

 9.  NA

 

 0.  Inap, 1 in 1204; 96 in 1205

 

 

 

1208        A7.    Did (he/she) have any serious ongoing health problems?

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204; 1 in 1207

 

 

 

1209        A8.    Was your (husband/wife) aware that (he/she) was dying?

 

 1.  YES

┌──────────────┐

│0 in 1210-1212├─────5.  NO

└──────────────┼

               ├─────8.  DK

               └─────9.  NA

 

 0.  Inap, 1 in 1204

 

 

 

1210        A9.    Did (he/she) seem to be at peace with the idea of dying?

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204; 5, 8-9 in 1209

 

 

 

1211        A10.   Did you and your (husband/wife) talk about the fact that

(he/she) might die?                                    

 

1.  YES

5.  NO

 

8.  DK


9.  NA

 

0.  Inap, 1 in 1204; 5, 8-9 in 1209

 

 

 

1212        A11.   Did you and (he/she) talk about how you would deal with

being on your own once (he/she) was gone?              

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204; 5, 8-9 in 1209

 

 

 

1213        A12.   INTERVIEWER CHECKPOINT                  

 

  1.  SPOUSE HAD (SERIOUS) ONGOING CONDITION

┌──────────────┐

│0 in 1214-1224├─────2.  ALL OTHERS

└──────────────┘

  0.  Inap, 1 in 1204

 

 

 

1214        A13.   Did you yourself have to provide physical care to your

(husband/wife) in the 6 months before (he/she) died?   

 

  1.  YES

┌──────────────┐

│0 in 1215-1224├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 1204; 2 in 1213

 

 

 

1215        A13a.  During the last 6 months of (his/her) life, about how many hours a week did you spend providing physical care for

your (husband/wife)?                                   

 

Code HOURS (01-95)

 

95.  95 hours or more

 

98.  DK

99.  NA

 

00.  Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214

 

 

 

1216        A13b.  For how many weeks, months, or years did you provide such

care?--WEEKS                                           

 


Code WEEKS (00-95)

 

98.   DK

99.   NA

 

00.   WEEKS not given; Inap, 1 in 1204; 2 in 1213;

                         5, 8-9 in 1214

 

 

 

1217        A13b.  For how many weeks, months, or years did you provide such

care?--MONTHS                                          

 

Code MONTHS (00-60)

 

98.   DK

99.   NA

 

00.   MONTHS not given; Inap, 1 in 1204; 2 in 1213;

                         5, 8-9 in 1214

 

 

 

1218        A13b.  For how many weeks, months, or years did you provide such

care?--YEARS                                           

 

Code YEARS (00-20)

 

98.   DK

99.   NA

 

00.   YEARS not given; Inap, 1 in 1204; 2 in 1213;

                         5, 8-9 in 1214

 

 

 

1219        A13c.  What kind of physical care did you provide?            

1220

1221               MEDICAL

 

11.   Medical care; gave medication/shots; changed dressings/tubes/bags; monitored machines

 

 

 

PERSONAL NEEDS (exc. 11)

 

21.   Elimination; helped with/took to bathroom; cleaned up after

22.   Bathing; gave baths; helped with bathing

23.   Feeding; fed spouse, prepared meals, etc.

24.   Help move around house; lifting; exercise/walking

25.   Getting dressed

 

 

 

 

29.   Other personal needs care: brushing hair (or teeth); giving rubdowns, shaving, etc.

 

 

 


 

 

 

 

 

 

 

 

 

 

1219        A13c.  Continued                                              

1220

1221               31.   Transportation; took spouse to doctor or other appointment; "drove him everywhere"

 

 

 

┌────────────┐

│Low Priority├─────95.   "Everything"; "complete care"

└────────────┘

┌─────────┐

│Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.   Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214;

      no further mention

 

 

 

1222        A14.   (RB, P. 1)  During the 6 months before (he/she) died, how stressful was it for you to care for (him/her) or to arrange for (his/her) care?  Was it very stressful, quite stressful, somewhat stressful, not too stressful, or not

at all stressful?                                      

 

1.  VERY STRESSFUL

2.  QUITE STRESSFUL

3.  SOMEWHAT STRESSFUL

4.  NOT TOO STRESSFUL

5.  NOT AT ALL STRESSFUL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214

 

 

 

1223        A15.   How much did caring for your (husband/wife) while (he/she) was ill keep you from carrying out other responsibilities in your life?  Would you say a great deal, somewhat, a

little, or not at all?                                 

 

1.  A GREAT DEAL

2.  SOMEWHAT

3.  A LITTLE

4.  NOT AT ALL

 

8.  DK

9.  NA


0.  Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214

 

 

 

 

 

 

 

 

 

 

 

1224        A16.   (RB, P. 2)  Please tell me how true the following statement is.  My (husband's/wife's) illness was physically painful for (him/her).  Is this very true,

somewhat, a little, or not true at all?                

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214

 

 

 

A17.   (RB, [STILL ON] P. 2)  Please tell me how true each of the following statements is in the case of your (husband/wife).

 

 

 

1225        A17a.  In the weeks before (his/her) death, things between my      (husband/wife) and me were going well.  Is this very true,

somewhat, a little, or not true at all?                

 

1.  VERY TRUE            ┌───────────────┐

2.  SOMEWHAT TRUE                        │USE SAME CODE 

3.  A LITTLE TRUE                        │FOR V1226-1228 │

4.  NOT TRUE AT ALL             └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204

 

 

 

1226        A17b.  My (husband/wife) lived a full life.                   

 

 

1227        A17c.  During (his/her) lifetime my (husband/wife) was able to

achieve just about everything (he/she) hoped to achieve.   

 

 

1228        A17d.  I believe that my (husband/wife) is now in a better place

than (he/she) was on this earth.                       


 

 

1229        A18.   Were you there with your (husband/wife) at the moment when

(he/she) died?                                         

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204

 

 

 

 

1230        A19.   (RB, P. 3) Do you feel that your (husband/wife) did things that may have contributed to (his/her) death?  Would you say no, not at all; yes, a little; yes, somewhat; or yes,

a great deal?                                          

┌──────────────┐

│0 in 1231-1232├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

              

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 1204

 

 

 

                                                               Rev. 11/2/90

 

 

1231        A19a.  What did (he/she) do that may have contributed to

1232               (his/her) death?                                       

 

11.   Smoking

12.   Alcohol/drug use

13.   Improper eating habits; wouldn't eat right foods/ follow diet

14.   Lack of exercise; just sat around

 

 

 

19.   Put off/refused medical care; "wouldn't follow doctor's orders"--n.e.c.

 

 

 

21.   Emotional stress (self-induced or caused by others)

22.   Physical stress/overwork; worked too hard; "pushed himself too much"

 

 

 

┌─────────┐

│Make Card├────────97.   Other

└─────────┘


98.   DK

99.   NA

 

00.   Inap, 1 in 1204; 1, 8-9 in 1230; no further

      mention

 

 

 

 

 

 

 

 

 

 

 

 

 

 

1233        A20.   (RB, STILL ON P. 3) Do you feel that anyone else did things that may have contributed to your (husband's/ wife's) death?  (Would you say no, not at all; yes, a

little; yes, somewhat; or yes, a great deal?)          

┌──────────────┐

│0 in 1234-1241├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

              

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 1204

 

 

 

1234(#1)    A20a.  Who do you feel may have contributed to the death?     

1238(#2)

  Use RELATIONSHIP MASTER CODE, except:

┌──────────────┐

│0 in 1239-1241├─────00.  No person #2 listed; Inap, 1 in 1204; 1, 8-9

└──────────────┘               in 1233

 

 

 

                                                               Rev. 11/2/90

 

1235(#1)    A20b.  What did (PERSON #1) do?   

1236(#1)    A20d.  What did (PERSON #2) do?                               

 

1239(#2)

1240(#2)

 

 

 

21.   Caused emotional stress (exc. 41); son took drugs, was in jail; conflicts with (person at A20a)

 

23.   Employment situation; dangerous/unhealthy working conditions

 


 

41.   Doctor/hospital incompetent/negligent/unhelpful

 

 

 

 

91.   Person shot/assaulted spouse (incl. in war)

 

 

 

┌─────────┐

│Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.   Inap, 1 in 1204; 1, 8-9 in 1233; 00 in 1238;

      no further mention

 

 

 

 

 

1237(#1)    A20c.  (RB, STILL ON P. 3) Do you blame (PERSON #1) for your

1241(#2)           (husband's/wife's) death?

A20e.  (RB, STILL ON P. 3) Do you blame (PERSON #2) for your

(husband's/wife's) death?

(Would you say no, not at all; yes, a little; yes,

somewhat; or yes, a great deal?)                       

 

1.  NO, NOT AT ALL

2.  YES, A LITTLE

3.  YES, SOMEWHAT

4.  YES, A GREAT DEAL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 1204; 1, 8-9 in 1233; 00 in 1238

 

 


                                      

 

SECTION A: HOUSEHOLD LISTING AND CIRCUMSTANCE OF THE DEATH

 

 

VAR #

 

┌─────────────────────────────────────────┐

│SPOUSE DIED BY ACCIDENT/ MURDER/ SUICIDE │

└─────────────────────────────────────────┘

 

 

1301        A21.   On what month, day and year did the (accident/murder/

suicide) happen?--MONTH                                

 

Code MONTH (01-12)

 

98.  DK

99.  NA

 

00.  Inap, 2 in 1204

 

 

 

1302        A21.   On what month, day and year did the (accident/murder/

suicide) happen?--DAY                                  

 

Code DAY (01-31)

 

98.  DK

99.  NA

 

00.  Inap, 2 in 1204

 

 

 

1303        A21.   On what month, day and year did the (accident/murder/

suicide) happen?--YEAR                                 

 

Code YEAR (1987-1995)

 

9998.  DK

9999.  NA

 

0000.  Inap, 2 in 1204

 

 

 

1304        A22.   INTERVIEWER CHECKPOINT                  

 

  1.  CAUSE WAS ACCIDENT

┌──────────────┐

│0 in 1305-1307├─────2.  ALL OTHERS

└──────────────┘

  0.  Inap, 2 in 1204

 

 

 

 

 

 

 


 

 

 

1305        A22a.  Was anyone else involved in the accident?              

 

  1.  YES

┌──────────────┐

│0 in 1306-1307├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 2 in 1204 or 1304

 

 

 

1306        A22b.  Who was that?  I don't need a specific name.           

1307

Use RELATIONSHIP MASTER CODE

 

00.   Inap, 2 in 1204 or 1304; 5, 8-9 in 1305; no

      further mention

 

 

 

1308        A23.   Was (he/she) still alive when you first heard about the

incident?                                              

 

  1.  YES

┌──────────────┐

│0 in 1309-1314├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 2 in 1204

 

 

 

1309        A23a.  How long after that did (he/she) die?   

 

Code # (01-60), except:

 

98.  DK

99.  NA

 

00.  Inap, 2 in 1204; 5, 8-9 in 1308

 

 

 

1310        A23a.  TIME UNIT                                              

 

1.  HOURS

2.  DAYS

3.  WEEKS

4.  MONTHS

 

9.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1308

 


 

 

 

 

 

 

1311        A24.   Was your (husband/wife) aware that (he/she) was dying? 

 

  1.  YES

┌──────────────┐

│0 in 1312-1314├─────5.  NO

└──────────────┤

               ├─────8.  DON'T KNOW

               └─────9.  NA

 

  0.  Inap, 2 in 1204; 5, 8-9 in 1308

 

 

 

1312        A25.   Did (he/she) seem to be at peace with dying?           

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1308 or 1311

 

 

 

1313        A26.   Did you and your (husband/wife) talk about the fact that

(he/she) might die?                                    

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1308 or 1311

 

 

 

1314        A27.   Did you and (he/she) talk about how you would deal with

being on your own once (he/she) was gone?              

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1308 or 1311

 

 

 

1315        A28.   Before the (accident/murder/suicide) did your (husband/

wife) have any serious ongoing health problems?        

 


  1.  YES

┌──────────────┐

│0 in 1316-1326├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 2 in 1204

 

 

 

1316        A29.   In the six months before (he/she) died, did you yourself have to provide physical care to (him/her) because of a

serious ongoing health problem?                        

 

  1.  YES

┌──────────────┐

│0 in 1317-1326├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 2 in 1204; 5, 8-9 in 1315

 

 

 

1317        A29a.  About how many hours a week did you spend providing physical care for (him/her) during the last six months of

(his/her) life?                                        

 

Code HOURS (01-95)

 

95.  95 hours or more

 

98.  DK

99.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1315 or 1316

 

 

 

1318        A29b.  For how many weeks, months, or years did you provide such

care?--WEEKS                                           

 

Code WEEKS (00-95)

 

98.   DK

99.   NA

 

00.   WEEKS not given; Inap, 2 in 1204; 5, 8-9

in 1315 or 1316

 

 

 

1319        A29b.  For how many weeks, months, or years did you provide such

care?--MONTHS                                          

 

Code MONTHS (00-60)

 

98.   DK

99.   NA


00.   MONTHS not given; Inap, 2 in 1204; 5, 8-9

in 1315 or 1316

 

 

 

 

 

 

 

 

 

 

 

 

 

1320        A29b.  For how many weeks, months, or years did you provide such

care?--YEARS                                           

 

Code YEARS (00-20)

 

98.   DK

99.   NA

 

00.   YEARS not given; Inap, 2 in 1204; 5, 8-9

in 1315 or 1316

 

 

 

1321        A29c.  What kind of physical care did you provide?            

1322

1323               MEDICAL

 

11.   Medical care; gave medication/shots; changed dressings/tubes/bags; monitored machines

 

 

 

 

 

PERSONAL NEEDS (exc. 11)

 

21.   Elimination; helped with/took to bathroom; cleaned up after

22.   Bathing; gave baths; helped with bathing

23.   Feeding; fed spouse, prepared meals, etc.

24.   Help move around house; lifting; exercise/walking

25.   Getting dressed

 

 

 

 

29.   Other personal needs care: brushing hair (or teeth); giving rubdowns, shaving, etc.

 

 

 

 

 

 

 

 

 

 


 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

1321        A29c.  Continued                                              

1322

1323               31.   Transportation; took spouse to doctor or other appointment; "drove him everywhere"

 

 

 

 

 

┌────────────┐

│Low Priority├─────95.   "Everything"; "complete care"

└────────────┘

┌─────────┐

│Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.  Inap, 2 in 1204; 5, 8-9 in 1315 or 1316; no

     further mention

 

 

 

1324        A30.   (RB, P. 4)  During the 6 months before (he/she) died, how stressful was it for you to care for (him/her) or to arrange for (his/her) care?  Was it very stressful, quite stressful, somewhat stressful, not too stressful, or not

at all stressful?                                      

 

1.  VERY STRESSFUL

2.  QUITE STRESSFUL

3.  SOMEWHAT STRESSFUL

4.  NOT TOO STRESSFUL

5.  NOT AT ALL STRESSFUL

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1315 or 1316

 

 

 

1325        A31.   How much did caring for your (husband/wife) during the 6 months before (he/she) died keep you from carrying out other responsibilities in your life?  Would you say

a great deal, somewhat, a little, or not at all?       


1.  A GREAT DEAL

2.  SOMEWHAT

3.  A LITTLE

4.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1315 or 1316

 

 

 

 

 

 

 

1326        A32.   (RB, P. 5)  Please tell me how true the following statement is.  My (husband's/wife's) condition was physically painful for (him/her).  Is this very true,

somewhat, a little, or not true at all?                

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204; 5, 8-9 in 1315 or 1316

 

 

 

A33.   (RB, [STILL ON] P. 5)  Please tell me how true each of the following statements is in the case of your (husband/wife).

 

1327        A33a.  In the weeks before (his/her) death, things between my      (husband/wife) and me were going well.  Is this very true,

somewhat, a little, or not true at all?                

 

1.  VERY TRUE            ┌───────────────┐

2.  SOMEWHAT TRUE                        │USE SAME CODE 

3.  A LITTLE TRUE                        │FOR V1328-1330 │

4.  NOT TRUE AT ALL             └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204

 

 

 

1328        A33b.  My (husband/wife) lived a full life.                   

 

 

1329        A33c.  During (his/her) lifetime my (husband/wife) was able to

achieve just about everything (he/she) hoped to achieve.   

 

 

1330        A33d.  I believe that my (husband/wife) is now in a better place


than (he/she) was on this earth.                       

 

 

 

1331        A34.   INTERVIEWER CHECKPOINT                  

 

1.  CAUSE OF DEATH WAS ACCIDENT OR MURDER

┌──────────────┐

│0 in 1332-1334├─────    2.  CAUSE WAS SUICIDE

└──────────────┘

0.  Inap, 2 in 1204

 

 

 

 

 

 

 

 

 

1332        A35.   (RB, P. 6) Do you feel that your (husband/wife) did things that may have contributed to (his/her) death?  Would you say no, not at all; yes, a little; yes, somewhat; or yes,

a great deal?                                          

┌──────────────┐

│0 in 1333-1334├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

               

               ├─────8.  DK

               └─────9.  NA

 

0.  Inap, 2 in 1204 or 1331

 

 

 

1333        A35a.  What did (he/she) do that contributed to (his/her) death?

1334

11.   Smoking

12.   Alcohol/drug use

13.   Improper eating habits; wouldn't eat right foods/ follow diet

 

 

 

 

 

19.   Put off/refused medical care; "wouldn't follow doctor's orders"--n.e.c.

 

 

21.   Emotional stress (self-induced or caused by others)

22.   Physical stress/overwork; worked too hard; "pushed himself too much"

23.   Employment situation--n.e.c.; dangerous/unhealthy working conditions

 

 

 

┌─────────┐

│Make Card├────────97.   Other


└─────────┘

98.   DK

99.   NA

 

00.  Inap, 2 in 1204 or 1331; 1, 8-9 in 1332; no

     further mention

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

1335        A36.   INTERVIEWER CHECKPOINT                  

 

  1.  CAUSE OF DEATH WAS ACCIDENT OR SUICIDE

┌──────────────┐

│0 in 1336-1344├─────2.  CAUSE OF DEATH WAS MURDER

└──────────────┘

  0.  Inap, 2 in 1204

 

 

 

1336        A37.   (RB, STILL ON P. 6) Do you feel that anyone else did things that may have contributed to your (husband's/ wife's) death?  (Would you say no, not at all; yes, a

little; yes, somewhat; or yes, a great deal?)          

┌──────────────┐

│0 in 1337-1344├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

               

               ├─────8.  DK

               └─────9.  NA

 

0.  Inap, 2 in 1204 or 1335

 

 

 

1337(#1)    A37a.  Who do you feel may have contributed to the death?     

1341(#2)

Use RELATIONSHIP MASTER CODE, except:

┌──────────────┐

│0 in 1342-1344├─────00.  No person #2 listed; Inap, 2 in 1204 or 1335;

└──────────────┘          1, 8-9 in 1336

 

 

 

                                                               Rev. 11/2/90

1338(#1)    A37b.  What did (PERSON #1) do?   

1339(#1)    A37d.  What did (PERSON #2) do?                               

 


1342(#2)

1343(#2)           21.   Caused emotional stress (exc. 41); son took drugs, was in jail; conflicts with (person at A20a)

 

23.   Employment situation; dangerous/unhealthy working conditions

 

 

41.   Doctor/hospital incompetent/negligent/unhelpful

 

 

 

91.   Person shot/assaulted spouse (incl. in war)

 

┌─────────┐

│Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.   Inap, 2 in 1204 or 335; 1, 8-9 in 1336;

      00 in 1341; no further mention

 

 

 

1340(#1)    A37c.  (RB, STILL ON P. 6) Do you blame (PERSON #1) for your

1344(#2)           (husband's/wife's) death?

A37e.  (RB, STILL ON P. 6) Do you blame (PERSON #2) for your

(husband's/wife's) death?

(Would you say no, not at all; yes, a little; yes,

somewhat; or yes, a great deal?)                       

 

1.  NO, NOT AT ALL

2.  YES, A LITTLE

3.  YES, SOMEWHAT

4.  YES, A GREAT DEAL

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1204 or 1335; 1, 8-9 in 1336;

    00 in 1341

 

 


 

                                      

SECTION B: GRIEF

 

 

VAR #

 

 

1401        B1.    INTERVIEWER CHECKPOINT                                 

 

  1.  SPOUSE HAD SERIOUS ONGOING CONDITION BEFORE                          (HE/SHE) DIED 

┌──────────────┐

│0 in 1402-1406├─────2.  ALL OTHERS

└──────────────┘

 

 

 

B2.    (RB, P. 7) For the next questions, please think about the time when your (husband/wife) was alive but in poor health.

 

1402        B2a.   At any time while your (husband/wife) was still alive, did you ever find that you couldn't get thoughts of (him/her) or (his/her) condition out of your mind even when you wanted to?  Would you say no, never; yes, but rarely; yes,

sometimes; or yes, often?                              

 

1.  NO, NEVER            ┌───────────────┐

2.  YES, BUT RARELY                      │USE SAME CODE 

3.  YES, SOMETIMES                       │FOR V1403-1406 │

4.  YES, OFTEN            └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 2 in 1401

 

 

1403        B2b.   Did you ever find yourself going over and over what was

happening?                                             

 

 

1404        B2c.   While (he/she) was still living, did you ever find yourself searching to make sense or find some meaning in

your (husband's/wife's) situation?                     

 

 


 

 

1405        B2d.   While (he/she) was still alive, did you ever have feelings of grief or sadness over the thought of losing your

(husband/wife)?                                        

 

 

1406        B2e.   Did you ever cry about what was happening to (him/her)?

 

 

 

B3.    (RB, [STILL ON] P. 7)  Now, I have a list of feelings and emotions that some people still experience many months after the loss of their husband or wife.  Please think about the past month.

 

1407        B3.    During the past month, have you felt afraid of what lies ahead for you? (Would you say no, never; yes, but rarely;

yes, sometimes; or yes, often)?                        

 

1.  NO, NEVER            ┌───────────────┐

2.  YES, BUT RARELY                      │USE SAME CODE 

3.  YES, SOMETIMES                       │FOR V1408-1429 │

4.  YES, OFTEN            └───────────────┘

 

8.  DK

9.  NA

 

 

1408        B4.    Have you felt extremely anxious and unsettled during the

past month?                                            

 

 

1409        B5.    During the past month, have you felt worried about how you

would manage your day-to-day affairs?                  

 

 

1410        B6.    Has life seemed empty?                                 

 

 

1411        B7.    During the past month, did you feel amazed at your

strength?                                              

 

 

1412        B8.    Did you feel you were coping well with the loss of your

(husband/wife)?                                        

 

 

1413        B9.    During the past month, did you feel proud of how well you

were managing?                                         

 

1414        B10.   Have you felt as though you were in a state of shock?  

 

 

1415        B11.   During the past month, have you felt as though you


couldn't believe what was happening?                   

 

 

1416        B12.   Have you felt emotionally numb?                        

 

 

1417        B13.   During the past month, have you felt resentful or bitter

about your (husband's/wife's) death?                   

 

 

 

 

1418        B14.   Have you felt that the death of your (husband/wife) was

unfair?                                                

 

 

1419        B15.   In the past month, have you felt anger toward God?     

 

 

1420        B16.   Have you felt empty inside, like an important part of you

is missing?                                            

 

 

1421        B17.   In the past month, have you felt that life has lost its

meaning?                                               

 

 

1422        B18.   In the last month, have you had any regrets about anything that happened between you and your (husband/wife) while

(he/she) was still alive?                              

 

 

1423        B19.   Have you felt as though you did all you could have done

for your (husband/wife) before (his/her) death?        

 

 

1424        B20.   During the past month, have you had any regrets about

things you did or failed to do while (he/she) was alive?     

 

 

1425        B21.   In the past month, have you heard a sound that you thought

might be (him/her)?                                    

 

 

1426        B22.   In the past month, have you sensed the presence of your

(husband/wife?)                                        

 

1427        B23.   To help you make decisions, have you thought about what

your (husband/wife) would have done?                   

 

 

1428        B24.   During the past month, have you felt drawn to places and


things that make you feel close to your (husband/wife)?

 

 

1429        B25.   Have you found yourself longing to have (him/her) with

you?                                                   

 

 

 

1430        B26.   (RB, STILL ON P. 7)  People have different reactions to the death of a husband or wife.  During the past month, have you had painful waves of missing your (husband/wife)?  (Would you say no, never; yes, but rarely; yes, sometimes;

or yes, often)?                                        

 

  1.  NO, NEVER

┌──────────────┐

│0 in 1431-1432├─────2.  YES, BUT RARELY

└──────────────┼───  3.  YES, SOMETIMES

               ├─────4.  YES, OFTEN

              

               ├─────8.  DK

               └─────9.  NA

 

 

 

1431        B26a.  (RB, STILL ON P. 7)  Has it happened in the last 6 months?--(no, never; yes, but rarely; yes, sometimes; or

yes, often)?                                           

 

 1.  NO, NEVER

┌─────────┐

│0 in 1432├─────────2.  YES, BUT RARELY

└─────────┼─────────3.  YES, SOMETIMES

          ├─────────4.  YES, OFTEN

         

          ├─────────8.  DK

          └─────────9.  NA

 

 0.  Inap, 2-4, 8-9 in 1430

 

 

 

[V1432: BUILD = 0]

 

 

 

1433        B27.   (RB, STILL ON P. 7)  During the past month, have you experienced feelings of intense pain or grief over the loss of your (husband/wife)--(no, never; yes, but rarely;

yes, sometimes; or yes, often)?                        

 

  1.  NO, NEVER

┌──────────────┐

│0 in 1434-1435├─────2.  YES, BUT RARELY

└──────────────┼─────3.  YES, SOMETIMES

               ├─────4.  YES, OFTEN

              

               ├─────8.  DK

               └─────9.  NA

 


 

[1V434: BUILD = 0]

 

 

 

1435        B27a.  (RB, STILL ON P. 7)  At any time since (he/she) died, did you ever experience feelings of intense pain or grief over (his/her) loss--(no,never; yes, but rarely; yes,

sometimes; or yes,often)?                              

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 2-4, 8-9 in 1433

 

 

 

[V1436-V1438: BUILD = 0]

 


 

 

SECTION C:  PARENTING

 

 

VAR #

 

The next questions are about children.

 

1501        C1.    Do you have any children who are not living here with you at the present time?  Please include adopted children or

stepsons and stepdaughters not living here.            

 

 1.  YES

┌─────────┐

│0 in 1502├─────────5.  NO, NO CHILDREN ELSEWHERE

└─────────┤  

          └─────────9.  NA

        

 

 

1502        C1a.   How many do not live with you?          

 

Code NUMBER (01-20)

 

98.  DK

99.  NA

 

00.  Inap, 5 or 9 in 1501

 

 

 

1503        C2.    Altogether, how many living children do you have?  Again, please include any adopted children or stepsons and

stepdaughters you may have.                            

 

  Code NUMBER (01-20), except:

 

  98.  DK

  99.  NA

┌──────────────┐

│0 in 1504-1525├─────00.  NONE

└──────────────┘


 

 

1504        C2a.   INTERVIEWER CHECKPOINT                                 

 

 1.  R ONLY HAS ONE CHILD             

┌─────────┐

│0 in 1505├─────────2.  ALL OTHERS

└─────────┘

 0.  Inap, 00 in 1503

 

 

 

1505        C2b.   Is this a son or daughter?                             

 

1.  SON

2.  DAUGHTER

 

9.  NA

 

0.  Inap, 00 in 1503; 2 in 1504

 

 

 

1506        C3.    INTERVIEWER CHECKPOINT                  

┌──────────────┐

│0 in 1507-1510├─────1.  R HAS NO CHILDREN LIVING ELSEWHERE

└──────────────┘

  2.  R HAS ONLY ONE CHILD LIVING ELSEWHERE

  3.  R HAS MORE THAN ONE CHILD LIVING ELSEWHERE

 

  9.  NA

 

  0.  Inap, 00 in 1503

 

 

 

1507        C4/C5. Think about your (son/daughter/children) who (does/do) not live with you.  Does (he/she/how many of your children)

live within an hour's drive of here?                   

01.  One (to C4); YES (to C5)

 

02-20.

 

96.  NONE (to C4); NO (to C5)

 

98.  DK

99.  NA

 

00.  Inap, 00 in 1503; 1 in 1506

 

 

 

 

 

 

 

 

 

 

 

 

 


 

 

 

 

1508        C4a/C5a.  (RB, P. 8) In the past 6 months, how often did you have

contact with your (son/daughter/at least one of your children) who (doesn't/do not) live with you, either in person, by phone or by mail.  Would you say more than once a week, about once a week, 1 to 3 times a month, less than

once a month or never?                                 

 

1.  MORE THAN ONCE A WEEK

2.  ABOUT ONCE A WEEK

3.  1 TO 3 TIMES A MONTH

4.  LESS THAN ONCE A MONTH

5.  NEVER

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503; 1 in 1506

 

 

 

1509        C4b/C5b.  Compared to when your (husband/wife) was alive, do you

have more interest, less interest, or about the same

amount of interest in having contact with your children?  

 

1.  MORE

3.  SAME

5.  LESS

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503; 1 in 1506

 

 

 

1510        C4c/C5c.  Have your children shown more interest, less interest,

or about the same amount of interest in having contact

with you?                                              

 

1.  MORE

3.  SAME

5.  LESS

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503; 1 in 1506

 

 

 

1511        C6.    INTERVIEWER CHECKPOINT                  

 

1.  R HAS ONLY ONE CHILD

2.  R HAS TWO OR MORE CHILDREN

 

0.  Inap, 00 in 1503

 

 


 

 

 

 

 

1512        C7/C16. (RB, P. 9)  How much do your children make you feel loved and cared for?  Would you say a great deal, quite a bit,

some, a little, or not at all?                         

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503

 

 

 

1513        C8/C17. (RB, STILL ON P. 9) How much do you feel they make too many demands on you?  (Would you say a great deal, quite a

bit, some, a little, or not at all?)                   

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503

 

 

 

1514        C9/C18. (RB, STILL ON P. 9) How much do you feel you make too many demands on your children?  (Would you say a great

deal, quite a bit, some, a little, or not at all?)     

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503

 

 

 

 

 

 


 

 

 

 

 

 

 

1515        C10/C19. (RB, STILL ON P. 9) How much are they willing to listen

when you need to talk about your worries or problems(--a

great deal, quite a bit, some, a little, or not at all)?      

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503

 

 

 

1516        C11/C20. (RB, STILL ON P. 9) How much are they critical of you or

what you do?  (Would you say a great deal, quite a bit,

some, a little, or not at all?)                        

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503

 

 

 

1517        C12/C21. (RB, P. 10) At this point in your life, how satisfied are

you with being a parent--are you completely, very,

somewhat, not very, or not at all satisfied?           

 

1.  COMPLETELY SATISFIED

2.  VERY SATISFIED

3.  SOMEWHAT SATISFIED

4.  NOT VERY SATISFIED

5.  NOT AT ALL SATISFIED

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503

 

 

 

 

 

 

 


 

 

 

 

 

 

 

 

 

1518        C13/C22. Not using the booklet--How often do you feel bothered or

upset as a parent--almost always, often, sometimes,

rarely, or never?                                      

 

1.  ALMOST ALWAYS

2.  OFTEN

3.  SOMETIMES

4.  RARELY

5.  NEVER

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503

 

 

 

1519        C14a/C23a. (RB, P. 11) How much do your children depend on you for

emotional support?  Would you say a lot, some, a little or

not at all?                                            

 

1.  A LOT            ┌───────────────┐

2.  SOME                                 │USE SAME CODE 

3.  A LITTLE                             │FOR V1520-1524 │

4.  NOT AT ALL            └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503

 

 

 

1520        C14b/C23b. How much do they depend on you for help or advice with

financial and legal matters?                           

 

 

1521        C14c/C23c. How much do they depend on you for help with errands,

babysitting or other chores?                           

 

 

1522        C14d/C23d. How much do you depend on your children for emotional

support?                                               

 

 

1523        C14e/C23e. How much do you depend on them for help or advice with

financial and legal matters?                           

 

 

1524        C14f/C23f. How much do you depend on them for help with errands or


other chores?                                          

 

 

 


 

 

1525        C15/C24. (RB, P. 12) At this point in your life, how often do you

and any of your children have unpleasant conflicts or disagreements?  Would you say more than once a week, about once a week, 1 to 3 times a month, less than once a month,

or never?                                              

 

1.  MORE THAN ONCE A WEEK

2.  ABOUT ONCE A WEEK

3.  1 TO 3 TIMES A MONTH

4.  LESS THAN ONCE A MONTH

5.  NEVER

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1503

 

 

                                                               Rev. 11/2/90

1526        C25.   How many grandchildren do you have, if any?

 

 01.  ONE

 

 02-60.

 

 98.  DK

 99.  NA

┌─────────┐

│0 in 1527├─────────00.  NONE

└─────────┘

 

 

 

1527        C25a/C25b. (RB,[STILL ON]P. 12) How often do you see your

(grandchild/grandchildren)?  (Would you say more than once a week, about once a week, 1 to 3 times a month, less than

once a month, or never?)                               

 

1.  MORE THAN ONCE A WEEK

2.  ABOUT ONCE A WEEK

3.  1 TO 3 TIMES A MONTH

4.  LESS THAN ONCE A MONTH

5.  NEVER

 

8.  DK

9.  NA

 

0.  Inap, 00 in 1526

 

 

Now I would like to ask you some questions about your relationships with your relatives and friends.  Please think of all your close family members, (including children,) as well as other friends and relatives.

 

 

 

 

 

 

 


 

 

 

SECTION D: SOCIAL SUPPORT

 

 

1528        D1.    Is there anyone in your life with whom you can really

share your very private feelings and concerns?         

 

  1.  YES

┌──────────────┐

│0 in 1529-1533├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

 

 

1529        D1a.   How many such people are there?                        

 

Code NUMBER (01-95)

 

98.  DK

99.  NA

 

00.  Inap, 5, 8-9 in 1528

 

 

 

1530        D2.    Since becoming widowed, have you developed any new relationships where you can share your very private

feelings and concerns?                                 

 

  1.  YES

┌──────────────┐

│0 in 1531-1533├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 5, 8-9 in 1528

 

 

 

1531        D2a.   How many new relationships like this have you developed

since becoming widowed?                                

 

Code NUMBER OF RELATIONSHIPS (01-20)

 

98.  DK

99.  NA

 

00.  Inap, 5, 8-9 in 1528 or 1530

 

 

 

1532        D2b.   INTERVIEWER CHECKPOINT                                 

 

1.  R HAS ONE NEW RELATIONSHIP

 


2.  R HAS MORE THAN ONE NEW RELATIONSHIP

 

9.  NA

 

0.  Inap, 5, 8-9 in 1528 or 1530

 

 

 

1533        D2c.   Is this person currently married or unmarried?

D2d.   How many of these people are currently married?        

 

01.  MARRIED (D2c); one person (D2d)

 

02-20.

 

96.  UNMARRIED (D2c); NONE (D2d)

 

98.  DK

99.  NA

 

00.  Inap, 5, 8-9 in 1528 or 1530

 

 

 

1534        D3.    Since becoming widowed, have you stopped seeing anyone with shom you used to share your private feelings and

concerns?                                              

 

  1.  YES

┌──────────────┐

│0 in 1535-1537├─────5.  NO

└──────────────┤ 

               ├─────8.  DK

               └─────9.  NA

 

 

 

1535        D3a.   How many such people do you no longer see?             

 

Code NUMBER OF RELATIONSHIPS (01-20)

 

98.  DK

99.  NA

 

00.  Inap, 5, 8-9 in 1534

 

 

 

1536        D3b.   INTERVIEWER CHECKPOINT                                 

 

1.  R HAS STOPPED SEEING ONE PERSON

 

2.  R HAS STOPED SEEING MORE THAN ONE PERSON

 

9.  NA

 

0.  Inap, 5, 8-9 in 1534

 

 

 

 


 

 

 

 

 

 

 

 

 

 

 

1537        D3c.   Is this person currently married or unmarried?

D3d.   How many of these people are currently married?        

 

01.  MARRIED (D3c); one person (D3d)

 

02-20.

 

96.  UNMARRIED (D3c); NONE (D3d)

 

98.  DK

99.  NA

 

00.  Inap, 5, 8-9 in 1534

 

 

 

1538        D4.    The next questions are about friends and relatives (other than your children).

Since becoming widowed, do you have contact with your other relatives and friends more, less, or about the same

as before?                                             

 

1.  MORE

3.  SAME

5.  LESS

 

8.  DK

9.  NA

 

 

 

1539        D5.    Compared to when your (husband/wife) was alive, do you have more interest, less interest, or about the same amount of interest in having contact with relatives and

friends?                                               

 

1.  MORE

3.  SAME

5.  LESS

 

8.  DK

9.  NA

 

 

 

1540        D6.    Do your relatives and friends show more interest, less interest, or about the same amount of interest in having

contact with you?                                      

 

1.  MORE


3.  SAME

5.  LESS

 

8.  DK

9.  NA

 

 

 

 

 

 

 

 

 

 

1541        D7.    (RB, P. 13)  (Again, not including your children) On the whole, how much do your friends and relatives make you feel loved and cared for?  Would you say a great deal,

quite a bit, some, a little, or not at all?            

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

 

 

1542        D8.    (RB, STILL ON P. 13) How much do you feel your friends and relatives make too many demands on you?  (Would you say a

great deal, quite a bit, some, a little, or not at all?)      

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

 

 

1543        D9.    (RB, STILL ON P. 13) How much are your friends and relatives willing to listen when you need to talk about your worries or problems(--a great deal, quite a bit,

some, a little, or not at all)?                        

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

 

 


1544        D10.   (RB, STILL ON P. 13) How much are they critical of you or what you do?  (Would you say a great deal, quite a bit,

some, a little, or not at all?)                        

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA


                                                                          

 

SECTION E: RESPONSES TO THE LOSS

 

 

VAR #

 

For the next questions, please think about the past month.

 

1601        E1.    (RB, P. 14) During the past month, how often have you had thoughts or memories of your (husband/wife)?  Would you say several times a day,  daily or almost daily, 2 to 3 times a week, about once a week, less than once a week, or

never?                                                 

┌──────────────┐

│0 in 1608-1609├─────1.  SEVERAL TIMES A DAY

└──────────────┼─────2.  DAILY OR ALMOST DAILY

               ├─────3.  2 TO 3 TIMES A WEEK

               ├─────4.  ABOUT ONCE A WEEK

               └─────5.  LESS THAN ONCE A WEEK

┌──────────────┐

│0 in 1602-1607├─────6.  NEVER

└──────────────┘

  8.  DK

  9.  NA

 

 

 

1602        E2.    (RB, P. 15)  During the past month, did thoughts or memories of your (husband/wife) make you feel sad or upset?  Would you say no, never; yes, but rarely; yes,

sometimes; or yes, often?                              

 

1.  NO, NEVER            ┌───────────────┐

2.  YES, BUT RARELY                      │USE SAME CODE 

3.  YES, SOMETIMES                       │FOR V1603-1607 │

4.  YES, OFTEN            └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 6 in 1601

 

 

 

1603        E3.    Did thoughts or memories of (him/her) make you feel happy

or at peace?                                           

 

 

1604        E4.    During the past month, have you had difficulty falling asleep because thoughts relating to (him/her) kept coming

into your mind?                                        

 

 

1605        E5.    Have you tried to block out memories or thoughts of your

(husband/wife)?                                        

 

 

 

 


 

 

 

 

 

 

1606        E6.    During the past month, did you find that you couldn't get thoughts of your (husband/wife) out of your mind even when

you wanted to?                                         

 

 

1607        E7.    During the past month, have you found yourself going over

and over what happened?                                

 

 

1608        E8.    (RB, STILL ON P. 15)  At any time since your (husband/ wife) died, did you ever find that you couldn't get thoughts of your (husband/wife) out of your mind even when you wanted to--(no, never; yes, but rarely; yes,

sometimes; or yes, often)?                             

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 1-5 in 1601

 

 

 

1609        E9.    (RB, STILL ON P. 15)  At any time since (his/her) death, did you ever find yourself going over and over what happened--(no, never; yes, but rarely; yes, sometimes; or

yes, often)?                                           

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 1-5 in 1601

 

 

 

1610        E10.   (RB, STILL ON P. 15)  During the past month, have you tried to keep busy so that you would be less likely to dwell on your (husband/wife) or (his/her) death?  (Would you say no, never; yes, but rarely; yes, sometimes; or

yes, often?)                                           

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN


8.  DK

9.  NA

 

 

 

 

 

 

 

 

1611        E11.   (RB, STILL ON P. 15)  During the past month, have you avoided people or places that remind you of (him/her)?  (Would you say no, never; yes, but rarely; yes, sometimes;

or yes, often?)                                        

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

 

 

1612        E12.   (RB, STILL ON P. 15)  Since your (husband's/wife's) death, did you ever ask yourself "Why me?" or "Why my (husband/wife)"?  (Would you say no, never; yes, but

rarely; yes, sometimes; or yes, often?)                

┌─────────┐ 

│0 in 1613├─────────1.  NO, NEVER

└─────────┤

                   2.  YES, BUT RARELY

                   3.  YES, SOMETIMES

                   4.  YES, OFTEN

         

          ├─────────8.  DK

          └─────────9.  NA

 

 

 

1613        E12a.  Were you able to answer this question?                 

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1, 8-9 in 1612

 

 

1614        E13.   (RB, STILL ON P. 15)  During the past month, have you ever found yourself searching to make sense or find some meaning in your (husband's/wife's) death--(no, never; yes,

but rarely; yes, sometimes; or yes, often)?            

 

  1.  NO, NEVER

┌──────────────┐

│0 in 1615-1616├─────2.  YES, BUT RARELY

└──────────────┼─────3.  YES, SOMETIMES


               └─────4.  YES, OFTEN

             

  8.  DK

  9.  NA

 

 

[V1615: BUILD = 0]

 

 

 

 

 

 

 

1616        E13a.  (RB, STILL ON P. 15)  At any time since (his/her) death, have you ever found yourself searching to make sense or find some meaning in (his/her) death--(no, never; yes, but

rarely; yes, sometimes; or yes, often)?                

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 2-4 in 1614

 

 

 

1617        E14.   (RB, P. 16) Have you made any sense or found any meaning in your (husband's/wife's) death?  Would you say no, not

at all; yes, a little; yes, some; or yes, a great deal?

┌──────────────┐

│0 in 1620-1622├─────1.  NO, NOT AT ALL

└──────────────┘

┌──────────────┐

│0 in 1618-1619├─────2.  YES, A LITTLE

└──────────────┼─────3.  YES, SOME

               └─────4.  YES, A GREAT DEAL

┌──────────────┐

│0 in 1620-1622├─────8.  DK

└──────────────┴─────9.  NA

 

 

 

 

1618        E14a.  Can you tell me why you feel that way?                 

1619

11.   Spouse was young; too young to die

12.   Spouse in good health; was not (seriously) ill

13.   Combination of youth and good health (11+12)

 

14.   Spouse old; had lived a long time

15.   Spouse in poor health; couldn't survive illness; had been sick a long time

16.   Combination of old age and poor health (14+15)

17.   Had poor health habits (smoked, drank, didn't get medical care, etc.)

 


19.   R blames medical personnel: doctor at fault, incompetent

 

21.   References to God or religion; God's will; prayer as means of coping

22.   Other fatalistic responses; these things just happen (to everyone); death as part of life-cycle; "it was his time"; "that's life"


 

 

1618        E14a.  Continued                                              

1619

31.   Positive aspects of death; spouse no longer suffers; at peace now

32.   Positive mentions of spouse's life in general: "he had a good life"; "we had a good marriage"

 

 

 

 

 

81.   R angry/upset/confused--n.e.c.

 

 

 

 

 

96.   There is no answer/meaning; have found no meaning (yet)

┌─────────┐

│Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.   Inap, 2-4 in 1617; no further mention

 

 

 

1620        E14b.  How have you done so?  (PROBE FOR A FULL RESPONSE.)

1621

Use same code as V1618-1619, except:

 

00.   Inap, 1, 8-9 in 1617; no further mention

 

 

 

1622        E14c.  (RB, STILL ON P. 16)  Are you comforted by this explanation--(no, not at all; yes, a little; yes, some; or

yes, a great deal)?                                    

 

1.  NO, NOT AT ALL

2.  YES, A LITTLE

3.  YES, SOME

4.  YES, A GREAT DEAL

 

8.  DK

9.  NA

 

0.  Inap, 1, 8-9 in 1617

 

 

 

 

 

 

 

 

 

 

 


 

 

 

 

E15.   (RB, P. 17)  Please tell me how true the following statements are as they apply to you now.

 

 

 

1623        E15.   At times, I want or need to think about my (husband/wife) or (his/her) death.  Is this very true, somewhat,

a little, or not true at all?                          

 

1.  VERY TRUE            ┌───────────────┐

2.  SOMEWHAT TRUE                        │USE SAME CODE 

3.  A LITTLE TRUE                        │FOR V1624-1626 │

4.  NOT TRUE AT ALL             └───────────────┘

 

8.  DK

9.  NA

 

 

1624        E16.   Almost everything I see or hear brings back painful

reminders of my (husband/wife).                        

 

 

1625        E17.   I try not to think about what happened.                

 

 

1626        E18.   I do not see any purpose in dwelling on my (husband's/

wife's) death.                                         

 

 

 

1627        E19.   (RB, STILL ON P. 17)  It is upsetting to come into contact with reminders of my (husband/wife)--(very true, somewhat,

a little, or not true at all)?                         

┌─────────┐

│0 in 1628├─────────1.  VERY TRUE

└─────────┼─────────2.  SOMEWHAT TRUE

          └─────────3.  A LITTLE TRUE

 

                    4.  NOT TRUE AT ALL

 

 8.  DK

 9.  NA

 

 

1628        E19a.  (RB, STILL ON P. 17)  There were times after my (husband/ wife) died when it was upsetting to come into contact with reminders of (him/her)--(very true, somewhat, a little, or

not true at all)?                                      

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK


9.  NA

 

0.  Inap, 1-3 in 1627

 

 

 

 

 

 

 

1629        E20.   (RB, STILL ON P. 17) I feel the need to be with people who will let me talk about my (husband/wife) or (his/her) death.  (Is this very true of you, somewhat,

a little, or not true at all of you?)                  

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

 

 

1630        E21.   (RB, P. 18) During the past month, how often did you actually talk about your (husband/wife) or (his/her) death with anyone?  Would you say  several times a day, daily or almost daily, 2 to 3 times a week, about once a week, less

than once a week, or never?                            

 

  1.  SEVERAL TIMES A DAY

  2.  DAILY OR ALMOST DAILY

  3.  2 TO 3 TIMES A WEEK

  4.  ABOUT ONCE A WEEK

  5.  LESS THAN ONCE A WEEK

┌──────────────┐

│0 in 1631-1634├─────6.  NEVER

└──────────────┘

  8.  DK

  9.  NA

 

 

 

1631        E22.   (RB, P. 19) In general, during the past month, has talking with others about (him/her) made you feel sad or upset?  Would you say no, never; yes, but rarely; yes, sometimes;

or yes, often?                                         

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 6 in 1630

 

 

 

 


 

 

 

 

 

 

 

 

 

 

 

1632        E23.   (RB, STILL ON P. 19) Has talking about (him/her) made you feel happy or at peace during the past month--(no, never;

yes, but rarely; yes, sometimes; or yes, often)?       

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 6 in 1630

 

 

 

1633        E24.   (RB, STILL ON P. 19) During the past month, has talking about (him/her), or (his/her) death, or how you are doing seemed to make other people uncomfortable--(no, never;

yes, but rarely; yes, sometimes; or yes, often)?       

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 6 in 1630

 

 

 

1634        E25.   (RB, STILL ON P. 19)  During the past month, have you ended up talking about your (husband/wife) or (his/her) death, or how you are doing even when you didn't want to--(no, never; yes, but rarely; yes, sometimes; or yes,

often)?                                                

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 6 in 1630

 

 

 


 

 

 

 

 

 

 

 

 

 

 

 

 

 

1635        E26.   (RB, P. 20)   Please tell me how true the following statements are as they apply to you.

At times I find that I want or need to cry.  Is this very true of you, somewhat, a little, or not true at all of

you?                                                   

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

 

 

1636        E27.   (RB, STILL ON P. 20) I believe that there is no point in crying over the loss of my (husband/wife) since crying will not bring (him/her) back.  (Is this very true for

you, somewhat, a little, or not true at all for you?)  

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

 

 

1637        E28.   (RB, P. 21) During the past month, how often did you actually cry about the loss of your (husband/wife)?  Would you say several times a day, daily or almost daily, 2 to 3 times a week, about once a week, less than once a week, or

never?                                                 

┌─────────┐

│0 in 1640├─────────1.  SEVERAL TIMES A DAY

└─────────┼─────────2.  DAILY OR ALMOST DAILY

          ├─────────3.  2 TO 3 TIMES A WEEK

          ├─────────4.  ABOUT ONCE A WEEK

          └─────────5.  LESS THAN ONCE A WEEK

┌───────────────┐

│0 in 1638-1639,├────6.  NEVER

     1641-1643 │

└───────────────┼────8.  DK

                └────9.  NA

 


 

1638        E28a.  How long did these periods of crying typically last?--

MINUTES                                                

 

Code MINUTES (01-95), except:

 

98.  DK

99.  NA

 

00.  MINUTES not given; Inap, 6, 8-9 in 1637

 

 

 

 

 

1639        E28a.  How long did these periods of crying typically last?--

HOURS                                                  

 

Code HOURS (01-95), except:

 

98.  DK

99.  NA

 

00.  HOURS not given; Inap, 6, 8-9 in 1637

 

 

 

1640        E28b.  (RB, P. 22) At any time since your (husband's/wife's) death did you ever cry about (his/her) loss?  Would you say no, never; yes, but rarely; yes, sometimes; or yes,

often?                                                 

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 1-5 in 1637

 

 

 

1641        E29.   (RB, P. 23) In general, during the past month, has crying made you feel worse than you did before--no, never; yes,

but rarely; yes, sometimes; or yes, often?             

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 6, 8-9 in 1637

 

 

 


1642        E30.   (RB, STILL ON P. 23) Has crying made you feel better during the past month(--no, never; yes, but rarely; yes,

sometimes; or yes, often)?                             

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 6, 8-9 in 1637

 

 

 

 

 

 

 

 

1643        E31.   (RB, STILL ON P. 23) During the past month, did you become tearful even when you didn't want to? (Would you say no,

never; yes, but rarely; yes, sometimes; or yes, often)?

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 6, 8-9 in 1637

 

 


 

 

SECTION F: COPING WITH PROBLEMS OF WIDOWHOOD

 

 

VAR #

 

The next questions are about problems and changes facing bereaved people.

 

1701        F1.    (RB, STILL ON P. 23)  During the past month, have you experienced feelings of grief, loneliness or missing your (husband/wife)?   (Would you say no, never; yes, but

rarely; yes, sometimes; or yes, often?)                

 

  1.  NO, NEVER

┌──────────────┐

│0 in 1702-1703├─────2.  YES, BUT RARELY

└──────────────┼─────3.  YES, SOMETIMES

               └─────4.  YES, OFTEN

             

  8.  DK

  9.  NA

 

 

 

[V1702: BUILD = 0]

 

 

 

1703        F1a.   (RB, STILL ON P. 23) Have you ever had feelings of grief, loneliness or missing your (husband/wife) since (he/she) died--(no, never; yes, but rarely; yes, sometimes; or yes,

often?)                                                

┌──────────────┐

│0 in 1704-1716├─────1.  NO, NEVER

└──────────────┤

                    2.  YES, BUT RARELY

                    3.  YES, SOMETIMES

                    4.  YES, OFTEN

              

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 2-4 in 1701

 

 

 

 

F2.    (RB, P. 24) I am going to read you a list of things people sometimes do to handle feelings of grief, loneliness or missing their (husband/wife).  For each one, please tell me how much you have done this to help you cope with your feelings, at any time since your (husband/wife) died.

 

 

 

 

 

 

 

 

 


 

 

 

1704        F2a.   To cope with these feelings, how much have you gotten out of the house--gone somewhere, or taken a walk or drive?

Have you done this a lot, a little, or not at all?     

 

1.  A LOT            ┌───────────────┐

2.  A LITTLE                             │USE SAME CODE 

3.  NOT AT ALL                           │FOR V1705-1712 │

                  └───────────────┘

7.  IF VOLUNTEERED: DID, BUT NOT TO COPE

    WITH SPOUSE'S DEATH

 

8.  DK

9.  NA

 

0.  Inap, 1, 8-9 in 1703

 

 

1705        F2b.   How much have you kept busy or tried to get involved in

some activity?                                         

 

 

1706        F2c.   How much have you turned to God for strength and comfort?   

 

 

1707        F2d.   How much have you tried to dull the pain you are feeling

by turning to alcohol, food or drugs, or sleeping more?

 

 

1708        F2e.   How much have you tried to think about the good things

about your life?                                       

 

 

1709        F2f.   How much have you told yourself that things will get better with time; that you have gone through the worst of

it?                                                    

 

 

1710        F2g.   How much have you tried to remember the good times that

you and your (husband/wife) had together?              

 

 

 

1711        F2h.   How much have you done things that help you feel close to

your (husband/wife), such as going to the cemetery?    

 

 

1712        F2j.   How much have you tried to forget about what has happened?  

 

 

 

 

 

 


 

 

 

 

 

 

 

 

 

 

 

 

F3.    For the next few questions you can just answer yes or no.  To help handle feelings of grief, loneliness or missing your (husband/wife), have you...

 

1713        F3a.   ...gone to a self-help group or support group for people

who have lost a spouse?                                

 

1.  YES            ┌───────────────┐

5.  NO                                   │USE SAME CODE 

                                         │FOR V1714-1716 │

8.  DK            └───────────────┘

9.  NA

 

0.  Inap, 1, 8-9 in 1703

 

 

1714        F3b.   Have you seen a minister, priest or other clergy for help?      

 

 

1715        F3c.   Have you talked to your family doctor about your feelings

of grief, loneliness or missing your (husband/wife)?   

 

 

1716        F3d.   Have you gone to a mental health professional for help--                  someone like a social worker or psychologist?          

 

 

 

1717        F4.    (RB, P. 25)  During the past month, have you been bothered by having to plan or fix meals and eat on your own?  Would you say no, never; yes, but rarely; yes, sometimes; or

yes, often?                                            

 

 1.  NO, NEVER

┌─────────┐

│0 in 1718├─────────2.  YES, BUT RARELY

└─────────┼─────────3.  YES, SOMETIMES

          └─────────4.  YES, OFTEN

 

 8.  DK

 9.  NA

 

 

 

1718        F4a.   Have you ever been bothered by having to plan or fix meals or eat on your own around the house since your

(husband/wife) died?                                   


1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 2-4 in 1717

 

 

 

 

 

 

 

 

 

1719        F5.    (RB, STILL ON P. 25)  During the past month, have you experienced problems keeping up with things around the house such as cleaning, paying bills, maintenance of your home and car or doing laundry?  (Would you say no, never;

yes, but rarely; yes, sometimes; or yes, often?)       

 

 1.  NO, NEVER

┌─────────┐

│0 in 1720├─────────2.  YES, BUT RARELY

└─────────┼─────────3.  YES, SOMETIMES

          └─────────4.  YES, OFTEN

 

 8.  DK

 9.  NA

 

 

 

1720        F5a.   Have you ever had any problem with keeping up with things

around the house since your (husband/wife) died?       

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 2-4 in 1719

 

 

 

1721        F6.    (RB, STILL ON P. 25)  During the past month, have you been bothered by having to handle such things as your (husband's/wife's) estate, arranging for credit or dealing with insurance companies or agencies like Blue Cross or Social Security?  (Would you say no, never; yes, but

rarely; yes, sometimes; or yes, often?)                

 

 1.  NO, NEVER

┌─────────┐

│0 in 1722├─────────2.  YES, BUT RARELY

└─────────┼─────────3.  YES, SOMETIMES

          └─────────4.  YES, OFTEN

 

 8.  DK

 9.  NA

 


 

1722        F6a.   Have you ever been bothered by any of these problems since

your (husband/wife) died?                              

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 2-4 in 1721

 

 

 

 

 

 

 

 

1723        F7.    (RB, STILL ON P. 25)  During the past month, have you been troubled by having to make major decisions without your (husband/wife), such as decisions about major purchases or whether or not to move?  (Would you say no, never; yes,

but rarely; yes, sometimes; or yes, often?)            

 

  1.  NO, NEVER

┌──────────────┐

│0 in 1724-1725├─────2.  YES, BUT RARELY

└──────────────┼─────3.  YES, SOMETIMES

               └─────4.  YES, OFTEN

 

  8.  DK

  9.  NA

 

 

 

1724        F7a.   Have you had to make any major decisions since your

(husband's/wife's) death?                              

 

 1.  YES

┌─────────┐      

│0 in 1725├─────────5.  NO

└─────────┤      

          ├─────────8.  DK

          └─────────9.  NA

 

 0.  Inap, 2-4 in 1723

 

 

 

1725        F7a.   Have you ever been bothered by having to make major

decisions since your (husband/wife) died?              

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 2-4 in 1723; 5, 8-9 in 1724

 


 

1726        F8.    During the past month, have you had any problems as a

result of being widowed that I haven't asked you about?

 

  1.  YES

┌──────────────┐

│0 in 1727-1728├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

 

 

 

 

 

 

 

 

 

 

1727        F8a.   What other problems have you experienced?

1728

11.   Emotional problems: loneliness, depression

12.   Social problems; problems with friends/other couples; "feel like a 5th wheel"

13.   Financial problems: (increased) bills or expenses; debt; financial decisions more difficult

 

 

 

 

 

21.   Upkeep/maintenance of house or car (exc. 13); no one to fix things; difficulty getting work done

 

 

 

 

 

31.   Transportation; can't/don't drive; "spouse always drove"

 

 

 

 

 

41.   Safety; no one around to watch house; fearful at night

 

 

 

 

 

 

 

┌─────────┐

│Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.   Inap, 5, 8-9 in 1726; no further mention

 



 

 

SECTION G:  MARRIAGE

 

 

VAR #

 

[V1801-V1802:  BUILD = 0]

 

 

 

In order to understand how a person is dealing with being bereaved, it is helpful to have some information about their marriage.

 

 

 

1803        G1.    Please tell me a little about what your (husband/wife) was like.  (GIVE RESPONDENT TIME TO GIVE A FULL ANSWER: DO NOT

PROBE.)                                                

 

Summarize R's answer to G1 using following code.  Ignore "neutral" mentions if any positive or negative mentions given.

 

11.   Clearly positive mentions only

 

 

 

 

 

31.   Mixed positive and negative mentions

 

 

 

 

 

51.   Clearly negative mentions only

 

 

 

 

 

71.   Neutral mentions only--no clearly positive or negative mentions given

 

 

 

 

 

96.   Refused; doesn't want to/can't talk about spouse

┌─────────┐

│Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

 

 

 

 

 

 

 


 

 

1804        G2.    INTERVIEWER CHECKPOINT                                 

 

1.  SPOUSE HAD SERIOUS ONGOING HEALTH PROBLEM

2.  SPOUSE DID NOT HAVE SERIOUS ONGOING HEALTH PROBLEM

 

 

 

G2a.   For the next questions, please think about the last few years of your marriage before your (husband/wife) became very ill.

G2b.   For the next questions, please think about the last few years of your marriage.

 

 

 

1805        G3.    (RB, P. 26)  How much did your (husband/wife) make you feel loved and  cared for?  Would you say a great deal,

quite a bit, some, a little, or  not at all?           

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

 

 

1806        G4.    (RB, STILL ON P. 26) How much do you feel (he/she) made too many demands on you in the last few years of your marriage (before (he/she) became very ill)?  (Would you say a great deal, quite a bit, some, a little, or not at

all?)                                                  

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

 

 

1807        G5.    (RB, STILL ON P. 26)  In the last few years of your marriage (before (he/she) became very ill)  how much was (he/she) willing to listen when you needed to talk about your worries or problems--(a great deal, quite a bit,

some, a little, or not at all)?                        

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 


8.  DK

9.  NA

 

 

 

 

1808        G6.    (RB, STILL ON P. 26) During the last few years of your marriage (before [he/she] became ill) how much were you willing to listen when your (husband/wife) needed to talk about (his/her) worries or problems--(a great deal, quite

a bit, some, a little, or not at all)?                 

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

 

 

1809        G7.    (RB, STILL ON P. 26)  How much do you think you made your (husband/wife) feel loved and cared for--(a great deal,

quite a bit, some, a little, or not at all)?           

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

 

 

1810        G8.    (RB, P. 27) During the last few years of your marriage (before [he/she] became ill), how often would you say you and your (husband/wife) typically had unpleasant disagreements or conflicts?  Would you say more than once a week, about once a week, 1 to 3 times a month, less than

once a month, or never?                                

 

1.  MORE THAN ONCE A WEEK

2.  ABOUT ONCE A WEEK

3.  1 TO 3 TIMES A MONTH

4.  LESS THAN ONCE A MONTH

5.  NEVER

 

8.  DK

9.  NA

 

 

 

1811        G9.    (RB, P. 28)  Please tell me how true the next two statements are.  My (husband/wife) did not treat me as well as I deserved to be treated.  Is this very true,

somewhat true, a little true, or not true at all?      

 


1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

 

 

 

1812        G10.   (RB, STILL ON P. 28)  I did not treat my (husband/wife) as well as (he/she) deserved to be treated.  (Is this very

true, somewhat true, a little true, or not true at all?)      

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

 

 

[V1813-V1839:  BUILD = 0]

 


 

 

SECTION H:  SELF DESCRIPTION

 

 

VAR #

 

H1.    (RB, STILL ON P. 28) Please tell me how true the following statements are as they apply to you now.

 

1901        H1.    On the whole I am satisfied with myself. (Is this very true, somewhat, a little, or not true at all as it applies

to you?)                                               

 

1.  VERY TRUE            ┌───────────────┐

2.  SOMEWHAT TRUE                        │USE SAME CODE 

3.  A LITTLE TRUE                        │FOR V1902-1908 │

4.  NOT TRUE AT ALL             └───────────────┘

 

8.  DK

9.  NA

 

 

1902        H2.    At times I think I am no good at all.                  

 

 

1903        H3.    I wish I could have more respect for myself.           

 

 

1904        H4.    All in all, I am inclined to feel that I am a failure. 

 

 

1905        H5.    I feel I am a person of worth, at least equal with others.    

 

 

1906        H6.    I have never worried about having a painful disease.   

 

 

1907        H7.    Funerals sometimes upset me.                           

 

 

1908        H8.    I am afraid of dying of cancer.                        

 

 

 

[V1909-V1952: BUILD = 0]


 

 

SECTION J:  HEALTH AND LIMITATION OF ACTIVTIES

 

 

VAR #

 

 

2001        J1.    The next questions are about your health.  In general, how satisfied are you with  your health‑‑completely, very,

somewhat, not very, or not at all satisfied?           

 

1.  COMPLETELY SATISFIED

2.  VERY SATISFIED

3.  SOMEWHAT SATISFIED

4.  NOT VERY SATISFIED

5.  NOT AT ALL SATISFIED

 

8.  DK

9.  NA

 

 

 

J2.    We'd like to know if you have experienced any of the following health problems during the last 12 months.

 

 

2002        J2a.   Have you had arthritis or rheumatism?   

 

1.  YES            ┌──────────────┐

5.  NO                                   │USE SAME CODE │

                                         │FOR V2003-2009│

8.  DK            └──────────────┘

9.  NA

 

 

2003        J2b.   During the last 12 months, have you had a lung disease?

 

 

2004        J2c.   Have you had hypertension, sometimes called high blood

pressure, or have you taken medication for it?         

 

 

2005        J2d.   Have you had a heart attack or other heart trouble during

the last 12 months?                                    

 

 

2006        J2e.   Have you had diabetes or high blood sugar, or have you

taken medication for it?                               

 

 

2007        J2f.   Have you had a stroke during the last 12 months?       

 

 

2008        J2g.   Have you had any broken or fractured bones?            

 

 

2009        J2h.   Have you lost any amount of urine beyond your control


during the last 12 months?                             

 

 


 

 

2010        J3.    Have you had cancer or a malignant tumor of any kind, or

have you been treated for it in the past 12 months?    

 

1.  YES

┌──────────────┐

│0 in 2011-2013├───5.  NO

└──────────────┤

               ├───8.  DK

               └───9.  NA

 

 

 

2011        J3a.   What kind of cancer or malignant tumor did you have? (In

2012               what part of your body did it start?)                  

2013

01.  "Abdomen"--NFS          33.  Melanoma

02.  Adrenal gland           95.  Metastasized; "all over"

03.  "Arm"--NFS              34.  Mouth; oral

04.  "Back"--NFS             08.  Myeloma (multiple)

05.  Bladder                 35.  "Neck"--NFS

06.  "Blood"--NFS            36.  Nose; nasal

07.  Bone; cartilage         37.  Ovary

08.  Bone marrow             38.  Pancreas; ampulla of

09.  Brain; astrocytoma           Vater

10.  Breast                  39.  "Pelvis"--NFS

11.  Bronchia; bronchus      40.  Penis

12.  Bowel                   41.  Prostate

12.  Rectum

13.  Cervix                  33.  Skin--melanoma; black

12.  Colon                        mole

14.  Ear                     42.  Skin--basal cell

15.  Endometrium             43.  Skin (other or NA which)

16.  Esophagus                    incl. any body part with

17.  "Extremities"--NFS           skin cancer

18.  Eye                     44.  Spine

19.  "Face"--NFS             45.  Spleen

20.  "Female organs"--NFS    46.  Stomach

21.  Gallbladder

22.  Gastrointestinal        47.  Testicles

48.  Throat

23.  "Head"--NFS             49.  Thyroid; goiter on neck

24.  Hip                     50.  Tongue

25.  Hodgkins                51.  Trachea

26.  Jaw                     52.  Urethra/ureter

27.  Kidney; renal           15.  Uterus/womb

28.  Larynx; vocal cords     53.  Vagina

29.  "Leg"--NFS              54.  Vulva; labia

06.  Leukemia    ┌─────────┐

30.  Lip         │Make Card├─97.  Other

31.  Liver       └─────────┘

11.  Lung; "chest"--NFS      98.  DK

32.  Lymph nodes/glands;     99.  NA

     "glands behind the

     ear"; "nodes";          00.  Inap, 5, 8-9 in 2010;

     lymphoma (exc. 25)           no further mentions


 

 

2014        J4.    In the past 12 months, have you had any major health

problems that I haven't asked you about?

 

1.  YES

┌──────────────┐

│0 in 2015-2017├───5.  NO

└──────────────┤

               ├───8.  DK

               └───9.  NA

 

 

 

2015        J4a.  What are they?                                          

2016

2017               Use HEALTH CONDITION MASTER CODE

 

000.  Inap, 5, 8-9 in 2014; no further mention

 

 

 

2018        J5.    INTERVIEWER CHECKPOINT                  

┌──────────────┐

│0 in 2101-2155├───1.  R ANSWERS "NO" TO ALL QUESTIONS IN J2a-h,J3 AND J4

└──────────────┘

2.  ALL OTHERS


 

                                      

SECTION J:  HEALTH AND LIMITATION OF ACTIVITIES

 

 

VAR #

 

MARK THE BOX NEXT TO ALL PREPRINTED CONDITIONS IN THE GRID TO WHICH R ANSWERED "YES" IN J2a-h,J3 AND J4. IF MORE THAN 5, ASK J6-9a ONLY FOR FIRST 5 CONDITIONS.

 

2101        J5.    SUMMARY                                                

 

Code # of columns filled in for J2a-h, J3a and J4a, including supplement pages, if any (01-14).

┌──────────────┐

│0 in 2111-2155├───01.  One

└──────────────┘

┌──────────────┐

│0 in 2120-2155├───02.  Two

└──────────────┘

┌──────────────┐

│0 in 2129-2155├───03.  Three

└──────────────┘

┌──────────────┐

│0 in 2138-2155├───04.  Four

└──────────────┘

┌──────────────┐

│0 in 2147-2155├───05.  Five

└──────────────┘

06.  Six

  .

  .

  .

14.  Fourteen

 

99.  NA (see Supervisor before using)

 

00.  Inap, 1 in 2018


 

 

                                                               Rev. 11/2/90

┌────────────────────────────────────────────────────────────┐

│NOTE:  The name of a "SPECIFY" condition must be matched to │

│its order of mention at J4a (p.41).  E.g., if "gout" was the│

│3rd condition coded at J4a, and it appears as a "SPECIFY" on│

│a supplement page, the code for condition type is 13.      

└────────────────────────────────────────────────────────────┘

 

2102(#1)           CONDITION TYPE (from top of column)                    

2111(#2)

2120(#3)           01.   (J2a) ARTHRITIS/RHEUMATISM

2129(#4)           02.   (J2b) LUNG DISEASE

2138(#5)           03.   (J2c) HYPERTENSION/HIGH BLOOD PRESSURE

2147(#6)           04.   (J2d) HEART TROUBLE

05.   (J2e) DIABETES/HIGH BLOOD SUGAR

06.   (J2f) STROKE

07.   (J2g) BROKEN OR FRACTURED BONES

08.   (J2h) LOSS OF URINE BEYOND CONTROL

09.   (J3a) CANCER

 

11.   (J4a) SPECIFY--1st mention at J4a, p.41

12.   (J4b) SPECIFY--2nd mention at J4a, p.41

13.   (J4c) SPECIFY--3rd mention at J4a, p.41

 

 

00.   Inap, 1 in 2018; no further conditions

 

 

 

2103(#1)    J6.    Were you hospitalized during the last 12 months for

2112(#2)           (CONDITION)?                                           

2121(#3)

2130(#4)           1.  YES

2139(#5)           5.  NO

2148(#6)

8.  DK

9.  NA

 

0.  Inap, 1 in 2018; no further conditions

 


2104(#1)    J7.    Did (CONDITION) start in the last 12 months or was it

2113(#2)           going on before that?                                  

2122(#3)  ┌─────────┐

2131(#4)  │0 in     ├───1.  STARTED IN LAST 12 MONTHS

2140(#5)  │J8-J9b  

2149(#6)  │for this │

          │condition│

          └─────────┘

          ┌─────────┐

          │0 in J7a ├───2.  GOING ON BEFORE

          └─────────┤

                    ├───8.  DK

                    └───9.  NA

 

     0.  Inap, 1 in 2018; no further conditions

 

 

 

2105(#1)    J7a.   Did it start before or after you became widowed?       

2114(#2)

2123(#3)           1.  BEFORE

2132(#4)           2.  AFTER

2141(#5)

2150(#6)           8.  DK

9.  NA

 

0.  Inap, 1 in 2018; 2, 8-9 in J7 for this condition;

    no further conditions

 

 

 

2106(#1)    J8.    In the past year, has your (CONDITION) become better,

2115(#2)           stayed about the same, or become worse?                

2124(#3)

2133(#4)           1.  BETTER

2142(#5)           2.  SAME

2151(#6)           3.  WORSE

 

8.  DK

9.  NA

 

0.  Inap, 1 in 2018; 1 in J7 for this condition;

    no further conditions


 

 

2107(#1)    J9.  INTERVIEWER CHECKPOINT                                   

2116(#2)

2125(#3)  ┌──────┐

2134(#4)  │0 in  ├─1.  CONDITION STAYED SAME

2143(#5)  │next 

2152(#6)  │3 vars│

          └──────┘ 2.  ALL OTHERS

 

0.  Inap, 1 in 2018; 1 in J7 for this condition; no

    further conditions

 

 

 

2108(#1)    J9a.   Did the change in your (CONDITION) happen before or after 2117(#2)           you were widowed?                                

2126(#3) 

2135(#4)           1.  BEFORE

2144(#5)           2.  AFTER

2153(#6)

8.  DK

9.  NA

 

0.  Inap, 1 in 2018; 1 in J7 or J9 for this condition;

    no further conditions

 

 

 

2109(#1)    J9b.   In what month and year did that change happen?--MONTH  

2118(#2)

2127(#3)           Code MONTH (01-12)

2136(#4)

2145(#5)           98.  DK

2154(#6)           99.  NA

 

00.  Inap, 1 in 2018; 1 in J7 or J9 for this condition;

     no further conditions

 

 

                                                               Rev. 11/2/90

2110(#1)    J9b.   In what month and year did that change happen?--YEAR   

2119(#2)

2128(#3)           Code YEAR (1945-1995)

2137(#4)

2146(#5)           9998.  DK

2155(#6)           9999.  NA

 

0000.  Inap, 1 in 2018; 1 in J7 or J9 for this condition;

       no further conditions

 


 

                                      

SECTION J:  HEALTH AND LIMITATION OF ACTIVITIES

 

 

VAR #

 

 

2301        J10.   Are you currently in bed or in a chair for most or all of

the day because of your health?                        

 

1.  YES

5.  NO

 

9.  NA

 

 

 

2302        J11.   Do you currently have any difficulty bathing by yourself?

 

1.  YES

┌─────────┐

│0 in 2303├────────5.  NO

└─────────┤

          └────────9.  NA

          

 

 

2303        J11a.  How much difficulty do you have bathing by yourself--a

little, some, a lot, or can't you do this on your own? 

 

1.  A LITTLE

2.  SOME

┌──────────────┐

│0 in 2304-2311├───3.  A LOT

└──────────────┴───4.  CANNOT DO

 

8.  DK

9.  NA

 

0.  Inap, 5 or 9 in 2302


 

 

2304        J12.   INTERVIEWER CHECKPOINT                                 

┌──────────────┐

│0 in 2305-2311├───1.  R ANSWERED "YES" (BOX WITH DOUBLE LINE) TO J10

└──────────────┘

                   2.  ALL OTHERS

 

0.  Inap, 3-4 in 2303

 

 

 

2305        J13.   Do you currently have any difficulty climbing a few

flights of stairs because of your health?              

 

1.  YES

3.  VOLUNTEERED: AGE IS ONLY LIMITATION

┌─────────┐

│0 in 2306├────────5.  NO

└─────────┤

          ├────────8.  DK

          └────────9.  NA

 

0.  Inap, 3-4 in 2303; 1 in 2304

 

 

 

2306        J13a.  How much difficulty do you have--a little, some, a lot, or

can't you do this at all?                              

 

1.  A LITTLE

2.  SOME

3.  A LOT

4.  CANNOT DO

 

8.  DK

9.  NA

 

0.  Inap, 3-4 in 2303; 1 in 2304; 5, 8-9 in 2305

 

 

 

2307        J14.   Do you currently have any difficulty walking several

blocks because of your health?                         

 

1.  YES

3.  VOLUNTEERED: AGE IS ONLY LIMITATION

┌─────────┐

│0 in 2308├────────5.  NO

└─────────┤

          ├────────8.  DK

          └────────9.  NA

 

0.  Inap, 3-4 in 2303; 1 in 2304

 

 

 

 

 

 

 


 

 

 

 

 

2308        J14a.  How much difficulty do you have--a little, some, a lot, or

can't you do this at all?                              

 

1.  A LITTLE

2.  SOME

3.  A LOT

4.  CANNOT DO

 

8.  DK

9.